Aging out of pediatric care

For Jacob Trossman’s whole life, his mother Marcy White has had to fight for his medical care. Jacob has an ultra-rare degenerative disorder called PMD, and at 12 years old, he became a patient in the Complex Care Program at SickKids in Toronto. But now, at 21, Jacob has aged out. SickKids says their services can be adequately replaced by specialists in the adult care system. But Marcy White is fighting harder than ever to keep Jacob with his pediatric team.