Episode 55: Living with Hypoplastic Left Heart Syndrome ft. Kasie Marek

As we celebrate American Heart Month, heart mama and two-time cancer survivor, Kasie Marek, speaks openly and honestly about what it’s like to have a son with Hypoplastic Left Heart Syndrom (HLHS). We have a beautiful discussion about the realities of caring for a child with a serious and rare heart condition.   In this episode, we chat about: What is Hypoplastic Left Heart Syndrome (HLHS)? How does HLHS affect a family: emotionally, logistically and financially? What are the treatment options available for HLHS? What are the effects of a heart transplant on a family? What’s the best advice for a fellow heart mama? Kasie Marek is a medical mom trying to figure it all out, one day at a time. A two-time childhood cancer survivor who entered the “nurse" mom world after her first-born, Noah, was born with Hypoplastic Left Heart Syndrome (HLHS). Now, she’s trying to navigate the everyday life of medical to-do lists, while still being a MOM, WIFE, and prioritizing self-care.   Connect with Kasie: Instagram  |  Facebook  |  Website (personal)  |  Website (business)   The NICU is hard. We’re here to help. Hand to Hold is a national nonprofit dedicated to providing neonatal intensive care unit (NICU) parents with personalized emotional support, educational resources and community before, during and after their baby’s NICU stay. NICU support is available at no cost to NICU parents in English and Spanish.   Connect with Hand to Hold: Learn more or get support at handtohold.org   Follow Hand to Hold on social media: Facebook  |  Instagram |  Twitter  |  YouTube   The following music was used for this media project: Music: Thriving Together [Full version] by MusicLFiles Free download: https://filmmusic.io/song/10332-thriving-together-full-version License (CC BY 4.0): https://filmmusic.io/standard-license   Music: Bright Colors Of Life by MusicLFiles Free download: https://filmmusic.io/song/7855-bright-colors-of-life License (CC BY 4.0): https://filmmusic.io/standard-license