A Window into Cri du Chat

08.06.2019 - By Patient Stories with Grey Genetics

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Leah Moore’s oldest child, Jordan, was diagnosed with Cri du Chat syndrome when she was 18 months old. The diagnosis ushered their family into an unexpected world that meant radically different expectations for their daughter’s life. Thanks to Early Intervention, at age 8, Jordan has already surpassed initial expectations: she walks, she talks, and she loves her two younger twin brothers. Leah describes how her family is similar to and also very different from other families and provides a window into what it is like to be the mother of an 8-year-old daughter with special needs. For Leah, self-care involves writing, and her primary outlet has been her blog, Loving You Big. Leah is also finishing up a book by the same name.

Links and Resources

Leah’s Blog: Loving You Big

Leah’s personal narrative piece that kicked off her blog: "The Irony of Language"

Description without hyperlink: 12-minute documentary film (2012) about Cri du Chat, featuring Leah’s daughter Jordan

“Welcome to Holland”

Five P Minus Society

Shane’s Inspiration

Connect with Leah:

Leah on Twitter: @LeahMooreWriter

Leah on Instagram: @lhm629

Leah on Facebook

Email Leah

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