Meniere's Muse

Daniela - Part 2 of 2 - PPPD, Neurovascular Dizziness, Jugular Compression, Thoracic Outlet Syndrome, Third Window Syndrome from Cochlear-Facial Nerve Canal Dehiscence, E 37


Listen Later

This is Part Two of a 2-part series, where Daniela shares her story, if you haven't listened to Part One you may want to start there first. We deal with so many different emotions when experiencing vestibular symptoms; when we are misdiagnosed, or mistreated by the medical system, and even comparing our symptoms, treatments, and how we deal with each obstacle as it's introduced into our lives. Our reactions to the symptoms may vary may that be through guilt, self-pity, anger, feeling like a burden, sadness, or any of the other emotions we all deal with, and yes, we all deal with them very differently. Daniela shares how her behavior and emotions changed when symptoms arrived in her life, she is recovering as a better person. Her story is so relatable. I hope you find that too.

.

Today Daniela shares her story of working in academia as a college professor when her first bothersome symptom of visual disturbances began.  From there the symptoms only increased in intensity and over time she was finally diagnosed with PPPD (Persistent postural perceptual dizziness); neurovascular dizziness caused by jugular compression and thoracic outlet syndrome, along with third window syndrome from cochlear-facial nerve canal dehiscence.  So many things changed her life, but I will save all the details for her to share with you in this Part 1 of a two-part series.


If you would like to reach out to Daniela, please find her on ⁠Instagram⁠ https://www.instagram.com/dizzyprof/

To read Daniela's book, "⁠Counterpreservation: Architectural Decay in Berlin since 1989"⁠, please find it on Amazon

If you would like to reach out to me, Heather Davies:

Email me at [email protected]

⁠⁠⁠Instagram⁠⁠⁠


⁠⁠⁠Private Facebook Group⁠⁠⁠


⁠⁠⁠Leave a voice message⁠⁠⁠


Would you like to JOIN THE MOVEMENT and make a donation in honor of my pledge for ⁠Steps 2 Balance ⁠week, May 21, 2023 through 27th, where we will be walking "together" to raise awareness, your support will also help make sure that when a person gets dizzy, they will get the help they need.  Please make your pledge ⁠here⁠ https://vestibular.salsalabs.org/s2b-2023/p/HeatherDavies

For more information on vestibular disorders please visit ⁠⁠⁠VeDA website⁠⁠⁠ at www.vestibular.org


⁠⁠Online Support Groups⁠⁠: Facilitated by Angela S., Lakin, Racheal, Dave, Joy and Marissa

The meeting ID and Pass Code are the same for all meetings. 

Meeting Id: 841 905 3323

Pass Code: dizzy

Meniere's Support Group times:

Wednesday 10am CT / 9am ET

Wednesday 2pm CT / 1pm ET

Wednesday 5pm CT / 4pm ET

Wednesday 8:30pm CT / 7:30pm ET


Vestibular Zoom Support Group Meetings (for all vestibular disorders):

Thursdays at 8pm CT / 7pm ET


Thank you for listening!


Remember to love yourself, be open to the work, lean on this beautiful community, and lastly believe healing is possible.  See you next week warriors! 

...more
View all episodesView all episodes
Download on the App Store

Meniere's MuseBy Heather Davies

  • 5
  • 5
  • 5
  • 5
  • 5

5

6 ratings


More shows like Meniere's Muse

View all
Up First from NPR by NPR

Up First from NPR

56,472 Listeners

Armchair Expert with Dax Shepard by Armchair Umbrella

Armchair Expert with Dax Shepard

69,798 Listeners

Huberman Lab by Scicomm Media

Huberman Lab

29,194 Listeners

ZOE Science & Nutrition by ZOE

ZOE Science & Nutrition

2,064 Listeners