Finding Your Voice Through Dravet Syndrome

Emily Richins and Chris Emineth connected through a Facebook support group for parents of children with Dravet Syndrome, a rare and severe form of epilepsy characterized by frequent, prolonged seizures, developmental delay, and other health problems. They share how Dravet has affected their lives and relationships, why the current Covid era is familiar and even easier for them, and what they’ve learned from one another and from their children.

Links and Resources

Dravet Syndrome Foundation

Make A Wish Foundation - kids with Dravet syndrome and other forms of epilepsy automatically qualify

Kids’ Waivers: information on Katie Beckett and other similar programs

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Send in a voice message: https://podcasters.spotify.com/pod/show/patient-stories-with-grey-genetics/message