SynGAP10 weekly 10 minute updates on SYNGAP1

SYNGAP10 - Ep. 10 - 14 May 2021 - Scales, Grands, Ciitizens, Kayo, iPSC

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SYNGAP10 - Ep. 10 - 14 May 2021 - Scales, Grands, Ciitizens, Kayo, iPSC

  • Validated Scales
    • - Congrats to the ORCA Team at Duke https://syngap.fund/orca
    - Join Dr. Frazier to learn more about the NET www.syngapresearchfund.org/families/resources/webinars
  • Grand parents article https://syngap.fund/grand
    • - Thank you Barbara for this article https://www.syngapresearchfund.org/post/loving-a-grandchild-with-syngap1
    - Join the Group there is a link in the article - Peer connection is so key
  • Ciitizen
    • - US sign ups continue!  Every patient matters/. https://www.ciitizen.com/syngap1/
    - International is open! Same link, but you must collect and upload.
  • Ashley Evans, the co-founder of SRF, gave an interview with Kayo - https://Syngap.fund/Kayo
  • IPSCs - We are in the home stretch of accelerating treatments via making iPSCs available
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