SynGAP10 weekly 10 minute updates on SYNGAP1

#SYNGAP10 - Ep. 15 - 18 July 2021 - Splash & #SYNGAPlove in 3 days, DSC & BCH Grants, more ICD attention!

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#SPLASH4SYNGAP is on MONDAY.

  • 3 days until June 21st!
  • Take photos with the flyer https://syngap.fund/love = https://www.syngapresearchfund.org/post/share-your-love-for-someone-with-syngap1-for-splash4syngap
  • Use hashtag #SYNGAPlove & #Splash4SYNGAP

    • DSC & BCH - It’s go time!  Let’s raise some funds. Read the blogs

    • Syngap.fund/biomarker = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development
    • Syngap.fund/BCH = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development

      • ICD-10

      • EveryLife case study! https://everylifefoundation.org/icd-code-roadmap/#toggle-id-13
      • Dravet Business Cards.   Copying is great!  Copy us.
      • ONE YEAR SOONER: Reminder why all this matters https://www.syngapresearchfund.org/post/oneyearsooner

        • ORCA: Via CB we are in.  Stay tuned here.  SYNGAP1 is one of the validation teams

        • Rett Press Release https://www.prweb.com/releases/rett_syndrome_research_trust_announces_development_o[…]on_ability_of_individuals_with_rett_syndrome/prweb18012275.htm
        • DUKE FDA GRANT https://populationhealth.duke.edu/news/orca-measure-expands-more-neurodevelopmental-diseases

          • GRANDPARENTS group is going strong

          • Tell your parents about https://syngap.fund/grand = https://www.syngapresearchfund.org/post/loving-a-grandchild-with-syngap1
          • Also had the c.333del (6!) and regular wednesday bit.ly/SRFHH at 5 PM Pacific.
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            SynGAP10 weekly 10 minute updates on SYNGAP1By Syngap Research Fund, 501(c)(3)
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