SynGAP10 weekly 10 minute updates on SYNGAP1

SYNGAP10 - Ep. 6 - 16 April 2021 - Newsletter, SSB, Ciitizen growth, Frazier, Sprint, ICD-10 & you are not alone.

Listen Later

SRF Newsletter yesterday, make sure you sign up!

  • SSB is off and running.
  • Webinars, another tomorrow in Spanish
  • Sprint next Saturday - April 24th
  • Celebrating Caren is now live and about to go on the circuit thanks Nancy, Daniel & illumina

    • SSB - Seizure sleep and behavio

    • Do the surveys!  Links are in the newsletter and here:
    • syngap.fund/ssb-Behavior
    • syngap.fund/ssb-sleep
    • syngap.fund/ST

      • STXBP1 has joined ciitizen - Now they are joining SYNGAP1, FOXG1 Tess Research (slc13a5), Rett

      SCN2A via Praxis, SCN8A & BPAN

      Tom Frazier (Autism Speaks, CSO) has completed Phase 1 of NET, now working on the tool.  He was just on the Today Show 2 weeks ago. - Here we are partnering with Malan, PTEN & ADNP.

      Sprint4Syngap is going strong: $69k+!  Way to go #TeamMyla!

      FondoSyngap.org is live, great work Vicky & Marta!

      We asked for an ICD10 code over a year ago - CDKL5, Dravet, Angleman's all have one, what's going on?

      You’re not alone, reach out: [email protected]

      ---
      Send in a voice message: https://podcasters.spotify.com/pod/show/syngap10/message
      ...more
      View all episodesView all episodes
      Download on the App Store
      SynGAP10 weekly 10 minute updates on SYNGAP1By Syngap Research Fund, 501(c)(3)
      • 5
      • 5
      • 5
      • 5
      • 5

      5

      83 ratings

      More shows like SynGAP10 weekly 10 minute updates on SYNGAP1

      View all
      The Joe Rogan Experience by Joe Rogan

      The Joe Rogan Experience

      226,206 Listeners

      How Did This Get Made? by Earwolf and Paul Scheer, June Diane Raphael, Jason Mantzoukas

      How Did This Get Made?

      22,865 Listeners

      Fantasy Footballers - Fantasy Football Podcast by Fantasy Football

      Fantasy Footballers - Fantasy Football Podcast

      28,686 Listeners

      20/20 by ABC News

      20/20

      11,821 Listeners

      The Ben Shapiro Show by The Daily Wire

      The Ben Shapiro Show

      153,960 Listeners

      Pod Save America by Crooked Media

      Pod Save America

      86,708 Listeners

      Crime Junkie by audiochuck

      Crime Junkie

      366,047 Listeners

      Behind the Bastards by Cool Zone Media and iHeartPodcasts

      Behind the Bastards

      15,310 Listeners

      The Megyn Kelly Show by SiriusXM

      The Megyn Kelly Show

      38,676 Listeners

      The Deck by audiochuck

      The Deck

      11,167 Listeners

      The Best of You by Dr. Alison Cook

      The Best of You

      798 Listeners

      SYNGAP1 Stories by Syngap Research Fund, 501(c)(3)

      SYNGAP1 Stories

      20 Listeners

      Café SYNGAP1 by Syngap Research Fund, 501(c)(3)

      Café SYNGAP1

      18 Listeners

      THREE by audiochuck

      THREE

      5,230 Listeners