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This episode is an absolute must. Â Don't miss it.
- Reminder that #SSB30 is happening now, the first pharma sponsored study on #ciitizen. Â If you are enrolled in Ciitizen, start doing your seizure tracker today:
- If you have not yet signed up for Ciitizen, there is still time, it's free: https://www.ciitizen.com/syngap1/
- đ¨ Breaking: We have reason to believe that we will get an ICD-10 code in June, effective 10/1/21.  This is a big deal.
- #Sprint4Syngap raised $122,500+. Â Huge thanks to everyone. Â Two great videos of the community building that took place are:
- Welcome to 4 new families just diagnosed in the past week.  đ¤Ż
- If you want to support SRF, call us, there is some much good work to do!
This is a podcast, sign up via your favorite service or watch previous episodes at: https://www.syngapresearchfund.org/syngap10-podcast
5
8383 ratings
This episode is an absolute must. Â Don't miss it.
- Reminder that #SSB30 is happening now, the first pharma sponsored study on #ciitizen. Â If you are enrolled in Ciitizen, start doing your seizure tracker today:
- If you have not yet signed up for Ciitizen, there is still time, it's free: https://www.ciitizen.com/syngap1/
- đ¨ Breaking: We have reason to believe that we will get an ICD-10 code in June, effective 10/1/21.  This is a big deal.
- #Sprint4Syngap raised $122,500+. Â Huge thanks to everyone. Â Two great videos of the community building that took place are:
- Welcome to 4 new families just diagnosed in the past week.  đ¤Ż
- If you want to support SRF, call us, there is some much good work to do!
This is a podcast, sign up via your favorite service or watch previous episodes at: https://www.syngapresearchfund.org/syngap10-podcast
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