-Working with Duke on the ORCA, let us know about your SYNGAPian here https://syngap.fund/comms

-Ciitizen, we are in the 3rd cohort, sign up quick: https://ciitizen.com/SYNGAP1

-Still fundraising for https://syngap.fund/ctr

-All social media is now on @cureSYNGAP1

   -https://Facebook.com/cureSYNGAP1

-Subscribe to this podcast at https://syngap.fund/10

-Working with Duke on the ORCA, let us know about your SYNGAPian here https://syngap.fund/comms

-Ciitizen, we are in the 3rd cohort, sign up quick: https://ciitizen.com/SYNGAP1

-Still fundraising for https://syngap.fund/ctr

-All social media is now on @cureSYNGAP1

   -https://Facebook.com/cureSYNGAP1

-Subscribe to this podcast at https://syngap.fund/10

#SYNGAP10 - Ep. 18 - "Seizures, Communication, Behavior, Sleep, Other" Is that right?

• https://Syngap.Fund/CTR - $26k and growing.

• https://syngap.fund/webinar - Next week, Saturday, July 17th @ 9 Pacific.

• 121 Warriors - https://syngap.fund/warrior - Egypt, Texas, Quebec & Argentina.  Great work.

• We are working on a poster for a meeting, stay tuned, we are learning it’s not easy to explain this life… a couple of stories

• Order of Symptoms

#SYNGAP10 - Episode 17 - 2 July 2021

- Thanks for listening, now please share!

- Newsletter: https://Syngap.Fund/July

- Census: https://Syngap.Fund/Census Honestly, it’s low.  Remember Covid.

- Frazier: 7/17 9 AM https://www.syngapresearchfund.org/webinars/improving-the-assessment-of-syngap1-by-creating-online-measures-for-parents-and-patients

- Palma: 8/19 10 AM https://www.syngapresearchfund.org/webinars/interpretation-of-syngap1-variants-srf

- Just talking yesterday to someone who redid testing: Genetic Testing needs to be updated every few years.

- July 1 paper: “We strongly recommend that ES/GS be considered as a first- or second-tier test for patients with CA/DD/ID.” https://www.nature.com/articles/s41436-021-01242-6

- Time for some fundraising: https://Syngap.Fund/CTR Deal done, Board reviewed. Post-docs staffed.  Let’s make it happen… everyone can help.

- Remember, SRF is the best deal ever: https://syngap.fund/smartdonors

- Subscribe at https://syngap.fund/10

#SYNGAP10 - Episode 17 - 2 July 2021 

- Thanks for listening, now please share!

- Newsletter: https://Syngap.Fund/July

- Census: https://Syngap.Fund/Census Honestly, it’s low.  Remember Covid.

- Frazier: 7/17 9 AM https://www.syngapresearchfund.org/webinars/improving-the-assessment-of-syngap1-by-creating-online-measures-for-parents-and-patients

- Palma: 8/19 10 AM https://www.syngapresearchfund.org/webinars/interpretation-of-syngap1-variants-srf

- Just talking yesterday to someone who redid testing: Genetic Testing needs to be updated every few years.

- July 1 paper: “We strongly recommend that ES/GS be considered as a first- or second-tier test for patients with CA/DD/ID.” https://www.nature.com/articles/s41436-021-01242-6

- Time for some fundraising: https://Syngap.Fund/CTR Deal done, Board reviewed. Post-docs staffed.  Let’s make it happen… everyone can help. 

- Remember, SRF is the best deal ever: https://syngap.fund/smartdonors

- Subscribe at https://syngap.fund/10

#SYNGAP10 - Episode 16 - 25 June 2021

• REMINDER - Put your own mask on first.

#SPLASH4SYNGAP is on MONDAY.

DSC & BCH - It’s go time!  Let’s raise some funds. Read the blogs

ICD-10

ORCA: Via CB we are in.  Stay tuned here.  SYNGAP1 is one of the validation teams

GRANDPARENTS group is going strong

• 3 days until June 21st!

• Syngap.fund/biomarker = https://www.syngapresearchfund.org/post/srf-grant-to-boston-childrens-for-natural-history-biomarker-development

ICD-10

• EveryLife case study! https://everylifefoundation.org/icd-code-roadmap/#toggle-id-13

• Rett Press Release https://www.prweb.com/releases/rett_syndrome_research_trust_announces_development_o[…]on_ability_of_individuals_with_rett_syndrome/prweb18012275.htm

• Tell your parents about https://syngap.fund/grand = https://www.syngapresearchfund.org/post/loving-a-grandchild-with-syngap1