SYNGAP10 - Ep. 6 - 16 April 2021
- SRF Newsletter yesterday, make sure you sign up!
Webinars, another tomorrow in SpanishSprint next Saturday - April 24thCelebrating Caren is now live and about to go on the circuit thanks Nancy, Daniel & illuminaSSB - Seizure sleep and behavior- Do the surveys! Links are in the newsletter and here:
syngap.fund/ssb-Behaviorsyngap.fund/ssb-sleepsyngap.fund/STSTXBP1 has joined ciitizen - Now they are joining SYNGAP1, FOXG1 Tess Research (slc13a5), Rett
SCN2A via Praxis, SCN8A & BPAN
Tom Frazier (Autism Speaks, CSO) has completed Phase 1 of NET, now working on the tool. He was just on the Today Show 2 weeks ago. - Here we are partnering with Malan, PTEN & ADNP.Sprint4Syngap is going strong: $69k+! Way to go #TeamMyla!FondoSyngap.org is live, great work Vicky & Marta!We asked for an ICD10 code over a year ago - CDKL5, Dravet, Angleman's all have one, what's going on?You’re not alone, reach out: [email protected]