Simply Unbreakable

Transitioning in Care: Navigating the Health Care System with Julie Drury


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Welcome to another episode of Simply Unbreakable brought to you by Chronically Simple. Your hosts, Kristy Dickinson, and Brenda Agnew are joined by Julie Drury who is an advocate for patients, families, and caregivers across the health care system, both nationally and internationally. Julie has a very interesting life experience, having had to navigate the system as a parent and caregiver to her medically complex daughter, Kate, who lived with a rare disease.

Key Takeaways:
[2:10] Why is it still a fight and an effort to navigate the healthcare system?
[6:36] Brenda shares a personal experience she recently had with her son.
[9:37] Julie talks about her daughter Kate, who died at 8 years old.
[12:17] Julie calls the Health Care system a “hot mess”.
[13:07] Julie shares a personal experience transitioning in care.
[16:25] 98% of the complaints from patients about the health care system are about communication.
[18:07] Brenda shares her simple point of view: If you can make a conversation or a process easier, why not do it? At the end of the day it makes more sense to have good communication, no one wants to enter an adversarial situation.
[20:34] Julie talks about how transitioning could work more efficiently.
[25:13] Julie explores the reasons why the health care system works the way it does.
[28:10] Julie speaks about the value and expertise of those who have experience in navigating the health care system.
[32:22] What can we do to help fix this transition aspect?
[36:09] One way to start changing things is to identify those good leaders and seek assistance from them.
[37:19] Julie recommends being very strategic.
[40:30] Kristy talks about transitioning to palliative care.
[42:25] Julie speaks on the transition from ICU to a floor room.

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Brought to you by Chronically Simple
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Simply Unbreakable is where ideas are shared and conversations about navigating the healthcare system are had. The ideas shared are those of the individuals and should not be interpreted as medical advice.

 

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Simply UnbreakableBy Chronically Simple