Imagine being told your child has an ultra-rare disease that is life-limiting, muscle-wasting, and due to a spontaneous genetic mutation...simply put, this child’s muscles will get weaker faster than they can get stronger. This is the life Kyle Gagner and his wife, Melissa, leads and through the chaos of it all has founded Levi’s Hope, an organization to help families adjust and cope with the life-changing diagnosis of Congenital Muscular Dystrophy (CMD), including the subtype their son, Levi, is affected by - LMNA-related CMD. In this episode Kyle describes Levi’s Hope for us, as well as shares how his community finds joy within challenges, how his family has integrated disability into a fully lived life, and the hope they have for their son.