Paul Melmeyer is the Associate Director of Policy at the National Organization for Rare Disorders (NORD) and on this episode he joins us to talk about the efforts of NORD and their involvement with Rare Disease Day.
NORD’s goal is to be a one-stop shop, offering aid to those facing the challenge of a rare disease. One of the benefits of NORD in particular, is the strength of collaboration. That with the same goal in mind - helping with the challenge of rare disease - the collaboration of the entire rare disease community is probably its greatest strength. As more and more people become more and more involved in advocacy within the rare disease community, it’s exciting to picture the progress that can be made 5, 10, 15 years in the future.