Two Rare Mama Bears

018 - Super Emmett!...A glimpse into Walker Warburg Syndrome


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Meet Emmett, an 18 month old Montana superhero! His superhero powers are discovered when you enter his secret world. Emmett lives with Walker Warburg Syndrome (WWS), which is a phenotype presentation of Alpha-Dystroglycanopathy (aDG) - one of the 5 congenital muscular dystrophy (CMD) subtypes. Emmett’s sweet mama, Kara, shares a glimpse into their everyday life and gives us the gift of letting us in on Emmett’s superhero secret.
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Two Rare Mama BearsBy Cure CMD (Matty Manley & Megan Meyer)

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