Matty and Megan talk about SciFam take-aways and how they were processing information they valued from the conference, and further - how to communicate it to their medical teams. They then chat on strategies they (and listeners) can use to ensure the science is translated through patient communities and then activated to care teams. One action item that came out of SciFam, fairly universally across the board, was how can we (as a patient community) work to help spread the word of CMD within medical communities to educate those who infrequently come into contact with individuals experiencing neuromuscular conditions.

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