We are often surprised by the twists and turns of life - especially when confronted with disability.   Lara Bloom was surprised when she was diagnosed with Ehlers Danlos Syndrome.  She was even more surprised to meet a man who helped her find her purpose - launching The Ehlers Danlos Society. Lara is president and CEO of The Ehlers Danlos Society and she is a global leader in the rare disease community. Lara has taken life's twists and surprises and turned them into a beautiful life of service to others. Join us for laughter and a conversation about what it means to build and sustain a life of advocacy.

We are often surprised by the twists and turns of life - especially when confronted with disability. Lara Bloom was surprised when she was diagnosed with Ehlers Danlos Syndrome. She was even more surprised to meet a man who helped her find her purpose - launching The Ehlers Danlos Society. Lara is president and CEO of The Ehlers Danlos Society and she is a global leader in the rare disease community. Lara has taken life's twists and surprises and turned them into a beautiful life of service to others. Join us for laughter and a conversation about what it means to build and sustain a life of advocacy.

We are often surprised by the twists and turns of life - especially when confronted with disability.&nbsp;&nbsp; Lara Bloom was surprised when she was diagnosed with Ehlers Danlos Syndrome.&nbsp; She was even more surprised to meet a man who helped her find her purpose - launching The Ehlers Danlos Society. Lara is president and CEO of The Ehlers Danlos Society and she is a global leader in the rare disease community. Lara has taken life's twists and surprises and turned them into a beautiful life of service to others. Join us for laughter and a conversation about what it means to build and sustain a life of advocacy.

097 - A life of Ehlers Danlos Advocacy - Lara Bloom

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad.  You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast.

Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA).  FA affects their balance and coordination, significantly limiting their physical abilities.  However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM).  Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch.

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The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM). Their RAAM journey is the subject of an award winning documentary called The Ataxian. Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Join us, subscribe, and tell a friend!

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097 - A life of Ehlers Danlos Advocacy - Lara Bloom

097 - A life of Ehlers Danlos Advocacy - Lara Bloom

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