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Join our discussion with Mary Beth Wighton, inspiring international dementia advocate, writer and speaker as we talk about what it's like living with a diagnosis of probable Frontal Temporal Dementia and learn how she captures her essence.  

Our conversation covers:

• what receiving the diagnosis is like and the importance of bedside manner;
• coming to terms with a diagnosis not just for herself but for family; 
• choosing to live with purpose and the role of being an advocate;
• creating culture and policy change through community;
• speaking up for our own needs and being a part of our own health care team;
• the importance of positive energy and connection;
• communicating our wishes with family and your most trusted supports;  
• why words matter (Caregiver vs. Care Partner)

**Note:  This episode was recorded in the fall of 2022.

Links mentioned:

• Mary Beth's book:  Dignity & Dementia:  Carpe Diem:  My journals of living with dementia 
• Murray Alzheimer Research and Education Program (MAREP)
• Canadian Dementia Strategy

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Do you have a question or a topic related to "capturing essence for care" that you would like discussed on the podcast? Send Lisa an email: [email protected]

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• Visit my YouTube channel or website

Intro and outro music with thanks: Upbeat and Sweet No Strings by Musictown