In this episode, I’m joined by Dr. Frank Grossmann, founder and CEO of Orphan HealthCare and Orphan Biotech AG in Switzerland, a pioneer in the fight against rare diseases.

Frank’s personal journey as a survivor of a rare childhood cancer drives his mission to revolutionize care for children and families affected by these conditions. Through his NGO and biotech startup, Frank combines compassion with cutting-edge technology to develop innovative medicines and holistic support systems.

In this compelling conversation, we explore:

▪️ Frank’s courageous story of survival and resilience.

▪️ How rare diseases affect children and families, and the solutions Frank has championed—including his heartwarming comic book, "Special Like You and Me", and trauma-support tools for children made in Bolivia.

▪️ The groundbreaking role of technology and AI in accelerating diagnostics and drug development for rare diseases.

▪️ Frank remarkable insight: “Rare diseases may be uncommon, but the solutions we create to address them often redefine the possibilities for all of medicine.”

▪️ Frank’s empowering belief that “the patient is the expert,” and how listening to their lived experience is key to driving innovation.

This episode will leave you inspired to see rare diseases not just as challenges, but as opportunities to reshape medicine with empathy, ingenuity and humanity.

Contact details and links:

Dr. Frank Grossmann, Founder & CEO of Orphan Healthcare

Förderverein OrphanHealthcareAlte Steinhauserstrasse 16330 Chame-mail: [email protected]: +41 79 246 50 69website: https://orphanhealthcare.net/chatbot: https://orphanhealthcare.net/chatbot/ Here you can chat with Franks dog Cuba

#rarediseases #patientcenteredcare #orphanhealthcare #futuremedicine#futurehealthcare #spirituality #empathy #thecosmicpowerhouse #futuremedicinewoman