Sign up to save your podcasts
Or
Share 126 - Love Your People: Meet Paisley
Share to email
Share to Facebook
Share to X
Share to email
Share to Facebook
Share to X
Or
126 - Love Your People: Meet Paisley
Paisley was diagnosed with Neonatal Marfan’s syndrome shortly after birth, a condition occurring at a frequency of 2 to 3 people per 10,000.Paisley’s medical story began with a dramatic entrance, marked by a c-section due to her fluctuating heart rate. The discovery of a heart murmur, turned-in feet, and unusually long fingers prompted a swift transfer to a different hospital, where the diagnosis unfolded. Neonatal Marfan’s syndrome, a rare connective tissue disorder, became the new reality for Marissa, Chris, and their newborn daughter.
Amidst the shock and uncertainty, the couple navigated the complex world of rare medical journeys, seeking answers and understanding.
Amidst the shock and uncertainty, the couple navigated the complex world of rare medical journeys, seeking answers and understanding.
View all episodes
By Go Shout Love
4.9
4141 ratings
Paisley was diagnosed with Neonatal Marfan’s syndrome shortly after birth, a condition occurring at a frequency of 2 to 3 people per 10,000.Paisley’s medical story began with a dramatic entrance, marked by a c-section due to her fluctuating heart rate. The discovery of a heart murmur, turned-in feet, and unusually long fingers prompted a swift transfer to a different hospital, where the diagnosis unfolded. Neonatal Marfan’s syndrome, a rare connective tissue disorder, became the new reality for Marissa, Chris, and their newborn daughter.
Amidst the shock and uncertainty, the couple navigated the complex world of rare medical journeys, seeking answers and understanding.
Amidst the shock and uncertainty, the couple navigated the complex world of rare medical journeys, seeking answers and understanding.