Navigating Endometriosis, Neuroproliferative Vestibulodynia, Neurodivergence, Non-Binary Identity, and Chronic Health Conditions

In previous episodes, we had experts discussing neuroproliferative vestibulodynia and mast cell activation syndrome - wondering what this looks like in real life? Join us for today's episode of Shea's Story Part 1.

We explore the extraordinary journey of Shea Shea O'Donnell, a 21-year-old master's psychology student, researcher, and endo warrior & advocate. Shea's story highlights the barriers many of those with endo go through, but as someone with neurodivergence, the journey through chronic health conditions can look a bit different.

From a young age, Shea confronted the challenges of endometriosis and congenital neuroproliferative vestibulodynia, enduring treatments including endometriosis excision, ablation, birth control, and more. Shea's candid revelations offer a window into the emotional and physical struggles entwined with chronic pain and illness.

Shea's narrative expands beyond health conditions; they've embraced their non-binary identity and neurodivergence, navigating mast cell activation syndrome (MCAS), autism spectrum disorder (ASD), ADHD, and PTSD. With determination, they've woven these facets into a story of resilience.

Shea is also conducting research to investigate how beliefs about reproduction and factors like gender identity, sexual orientation, and adverse childhood experiences affect people's experience living with endometriosis. This study involves completing a comprehensive survey, probing various aspects of participants' backgrounds, endometriosis experiences, beliefs, and histories of adverse childhood experiences.

Participants eligible for the study are individuals assigned female at birth, aged 18 to 50, who have surgically diagnosed endometriosis and reside in the United States. If you meet these criteria and are interested in contributing, you can reach out to [email protected] to confirm your eligibility. Upon confirmation, you will receive a personalized survey link.

As a token of gratitude for participation, at the survey's completion, you'll be invited to enter your email address to receive a $20 gift card. Please note, if you're deemed ineligible to complete the survey, compensation won't be provided.

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iCareBetter

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