In this episode, Polly shares her journey parenting 5 year old twins Fox & Lili Rose who have a genetic condition so rare that no one else in the world has it. We talk about their long stay in the NICU, finding support from others on a similar journey and how important that is, and the resilience her situation has given her.

We discuss learning to stay in the present and the beauty of finding joy in small moments. Polly is really open and honest in this emotional chat, and mentions the book Unique by Melanie Dimmitt and the charity Unique that both really helped her. Links for both are here:

www.rarechromo.org

https://amzn.eu/d/iJvByTW

Tags: motherhood, NICU, twins, IVF, parenting, emotional journey, genetic condition, special needs, ableism