The Special Needs Sibling Podcast

31. Experiencing an Evolving World As A Sibling


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In this episode we talk about:

  • Allan’s family and brother with an intellectual disability
  • How having a special needs sibling was different in the 1950s versus in the 2000s (and today)
  • How life is being your own sibling’s guardian
  • Family dynamics between parents and siblings
  • Difficulties of having a sibling join ill-equipped institutions
  • Not being afraid to admit negative feelings
  • Allan’s encouragement to fellow siblings
  • Links:

    • Allan’s Book: https://www.amazon.com/Fred-Me-Willowbrook-Survivors-Story/dp/B08ZDL1J8H
    • The Curious Incident of the Dog in the Night-Time: https://www.amazon.com/Curious-Incident-Dog-Night-Time/dp/1400032717
    • Cost of Living by Martyna Majok: https://www.pulitzer.org/winners/martyna-majok#:~:text=Directed%20by%20Obie%20Award%20winner,we%20all%20need%20each%20other
    • The End of Average by Todd Rose: https://www.toddrose.com/endofaverage
    • Willowbrook State Schook: https://en.wikipedia.org/wiki/Willowbrook_State_School
    • Allan’s NYU-Tandon faculty page: https://engineering.nyu.edu/faculty/allan-b-goldstein
    • Direct Service Provider: https://opwdd.ny.gov/providers/direct-support-professionals
    • Bernard Carabello: https://nysilc.org/inductees/32-2022/234-bernard-carabello
    • AHRC: https://www.ahrcnyc.org/
    • Allan on PBS News Hour: https://www.youtube.com/watch?v=5oFxwCgATW0
    • More Info:

      • Check out the blog and contact Charlene here: https://thespecialneedssiblingpodcast.com/
      • Get episode updates directly to your inbox: https://www.thespecialneedssiblingpodcast.com/newsletter
      • Support the podcast on Ko-fi: https://ko-fi.com/thespecialneedssiblingpodcast
      • Music by:

        • AlexGrohl from Pixabay
        • QubeSounds from Pixabay
        • Edited by: 

          • Veronica Duquez
          • ...more
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            The Special Needs Sibling PodcastBy The Special Needs Sibling Podcast