Molecular biologist Ody Sibon has been studying a rare disease called Pantothenate-Kinase-Associated-Neurodegeneration (PKAN) for years. By coincidence she discovers a vitamin derivative in a fruitfly model that might also help PKAN patients. To bring her research all the way to the patient she asked help of business developer Hans Hektor from the Innovation Center of the UMCG.  Together they succeeded in developing this medical food supplement for a clinical trial in patients. But, how? Where did they start? What challenges did they encounter? What did they learn?