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56: Jodie Lemacks - CHD Mom and Advocate Who Connects and Supports CHD Families Throughout The United States.
Jodi shares her story about her teenage son who was born with congenital heart disease.
Jodi shares her experience about when her son was first diagnosed with CHD. She talks about the delivery and the first two heart surgeries. Jodi talks about the overwhelming stress that she experienced leading up to her son's Fontan heart surgery. Moreover, she talks about how her husband handled the stress of their son's Fontan surgery and how important it is for fathers to have their own support group. Plus, Jodi talks about life after her son's Fontan surgery and how she realized that congenital heart disease for single ventricular children and their parents is a life long journey. She also talks about the long-term quality of life for children after the Fontan surgery. Moreover, Jodi discusses the importance of research for congenital heart disease and identifies specific trials that are being done by different organizations. Finally, Jodi shares a valuable life lesson about CHD and how it affects parents. Join us for this episode.
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By Rita Ralston, Kelly Blumenthal, Charles GeorgeJodi shares her story about her teenage son who was born with congenital heart disease.
Jodi shares her experience about when her son was first diagnosed with CHD. She talks about the delivery and the first two heart surgeries. Jodi talks about the overwhelming stress that she experienced leading up to her son's Fontan heart surgery. Moreover, she talks about how her husband handled the stress of their son's Fontan surgery and how important it is for fathers to have their own support group. Plus, Jodi talks about life after her son's Fontan surgery and how she realized that congenital heart disease for single ventricular children and their parents is a life long journey. She also talks about the long-term quality of life for children after the Fontan surgery. Moreover, Jodi discusses the importance of research for congenital heart disease and identifies specific trials that are being done by different organizations. Finally, Jodi shares a valuable life lesson about CHD and how it affects parents. Join us for this episode.