August 12, 2024

57 | We're back!!!!

15 minutes

That's right, ladies and gentlemen - we are back at it and excited to begin connecting with others again!

Acadia working to see Rett therapy Daybue approved in Japan, Europe

What great news for individuals with Rett syndrome across the world! We are hopeful that by making this drug more widely available to those that need, improvements will be able to be made for the betterment of all!

Potential cancer drug slows Rett's progression, aids survival in mice

This news is also very exciting. It's always great to hear about progress being made in science to help individuals with Rett. In the end, these types of studies just help us better understand how Rett is. (And yes, I did mean to phrase it like that.)

Give Back & Gear Up T-shirt Fundraiser!

We are excited to be partnering with Frankie Says Fight Rett to bring to you this great t-shirt! All funds from this sale will go to Frankie Says Fight Rett, a 501(c)3 non-profit that not only helps bring awareness to Rett syndrome, but also helps those in need with the expenses of traveling to medical appointments, receive adaptive equipment, helps provide respit for parents and caregivers. Support this fundraiser today by purchasing a t-shirt before it's too late - pre-orders end September 15, 2024.

If you are a newly diagnosed family, you can find loads of information regarding Rett syndrome on our website (linked below), including links to various foundations and support groups worldwide. And, of course, feel free to reach out to us; we love connecting with new families!

Subscribe today so that you never miss an episode. And we'll see you next time!

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