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A quick update: since this podcast was recorded, Neurovero has been renamed to Mindris! While you'll hear us use the original name during the conversation, the app we're discussing is now called Mindris. www.mindris.app
Happy awareness month and happy 40th anniversary to the 5p- Society
In this special episode of the BREATHE Podcast, Janie is joined by Jolene Towers to discuss one of the most anticipated events of the year for the 5p- community—the upcoming 5p- Society National Conference in Salt Lake City, Utah. Jolene shares exciting details about the location, planned sessions, family activities, and the unique opportunities for connection, support, and celebration.
Whether you're a longtime attendee or considering your first trip, this episode gives you an inside look at what makes this conference so impactful. From expert speakers to unforgettable family moments, find out why you won’t want to miss joining us in Salt Lake City this summer.
Episode 1: 5p- Society is Bigger Than Just a Membership
Host: Janie Guy
Guests: Robert Brookman, Laura Castillo, Nick Wallace
Welcome to the debut episode of The Breathe Series—a new podcast by the 5p- Society designed to bring real conversations and meaningful connection right to your earbuds.
In this first episode, host Janie Guy sits down with 5p- Society Board Member Robert Brookman to explore his family’s journey, from the moment they received their daughter’s diagnosis to the unexpected ways community and support have helped them breathe a little easier.
You’ll also hear from 5p- Society President Nick Wallace and Executive Director Laura Castillo as they share what makes the upcoming 5k for 5p- so powerful—not just for raising awareness, but for bringing families together from across the globe.
This episode is full of honesty, hope, and insight—and it’s just the beginning.
Press play and see why 5p- Society is more than a membership... it’s a movement.
Welcome to the BREATHE Series — a heartfelt journey of hope, resilience, and community for families impacted by 5p- syndrome and other rare diagnoses. In this introduction, discover how every story shared here reminds us to pause, breathe, and find strength in connection. Join us as we lift each other up through real conversations and shared experiences.
From the publisher's feed
Created and hosted by Janie Guy--a parent and passionate advocate within the 5p- community-- BREATHE is a podcast dedicated to meaningful conversations, shared experiences, and thoughtful insights…
BREATHE explores the joys and complexities of caring for individuals with disabilities... from personal stories and practical resources to fresh perspectives and moments of reflection, there's always an opportunity to connect, learn, and feel a little less alone.
And for extra brownie points, each episode closes with a brief mindful moment—an invitation to slow down and reconnect; to carry a little calm into the rest of your day.
Rooted in the belief that community brings strength and shared stories bring understanding, BREATHE is a space to feel seen, supported, and inspired.
So, whether you're a parent, caregiver, or advocate, this series is here to remind you: you're not alone, and it's okay to pause and just breathe.