In this profoundly moving episode, we sit down with Giuliana Ferretti, mother, advocate, Advanced Enrolled Nurse, and founder of both Plan Wise Living and the not for profit charity Genovation. During this deeply personal conversation we discuss raising her daughter Gabriella, who lives with a rare genetic disorder. Giuliana shares how a mother’s gut instinct defied medical doubt, how love evolved into full time care, and how she’s built a life centred around inclusion, advocacy, and hope.

With over 20 years of experience in the disability sector and a career that spans nursing, education, and community leadership, Giuliana brings unmatched insight into the realities faced by families supporting loved ones with complex needs.

We explore the emotional toll of constant caregiving, the systemic challenges within the NDIS, and what true inclusion could look like if society embraced universal design. Giuliana’s story is one of resilience and fierce love, a reminder that behind every diagnosis is a family navigating the unknown.

💬 Trigger Warning: This episode discusses caregiver fatigue, grief, and systemic neglect.
 📞 If you need support, contact Lifeline at 13 11 14.

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