Vanessa sits down with Jessica Cella to discuss Jessica's tireless advocacy work on behalf of the adrenal diseases community. Jessica shares a wealth of information, including tips on getting to know your local EMS, how to assemble and label your personal emergency kit, and small ways that everyone can get into advocacy to help us reach a world with less suffering and death from adrenal diseases.

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

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'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Dr. Joshua Stilley stops by All Things Adrenal to talk with Vanessa about emergency medical systems: their variance between states and even counties, the importance of communicating ahead of time with your emergency care system, and ways you can prepare yourself and your loved ones to face life's most challenging moments. 

Visit NADF's Emergencies page for downloadable emergency treatment orders for adults and children, plus other life-saving resources.

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Vanessa talks with her friend and NADF Teen Support Group co-leader Elizabeth Reidy about how Elizabeth restructured her athletic life after her Addison's Disease diagnosis. Elizabeth shares how she went from the ICU to a half marathon in six months, and how keeping a disease inventory helps her manage her adrenal insufficiency. Come for the practical tips, stay for the heartwarming story of family overcoming health obstacles together.

Follow Elizabeth on Instagram @eliz_21.

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Vanessa sits down with NADF's Pennsylvania Support Group leader AJ Connor to talk about how his teenage Addison's disease diagnosis played out, how it inspired his nursing career, and what advantages there are to being both a patient and a health care professional when it comes to advocacy for adrenal diseases. AJ offers helpful tips on using patient advocates in hospital settings and mindfulness in managing adrenal insufficiency symptoms.

AJ Addison's Disease Journey - YouTube

Watch AJ's presentation from Navigating Adrenal Health 2025

Support groups are for everyone! Learn more and sign up at NADF.us/support-groups

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Vanessa sits down with Meg Zinky, NADF's interactive media designer, to talk about all the plans falling into place for Adrenal Disease Awareness Month. From online conferences to social media challenges to getting proclamations issued, find out how you can join in the activities online, on your couch, and in your community.

Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

NADF.us/AADAM for information on Light Up for Adrenal, proclamation template letters, conference registration, and more. 

NADF.us/April7 for information on international celebrations, the AAES webinar registration, and the IAC's incredible work.

We are excited to raise awareness with you!

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Vanessa and her friend (and NADF's newest employee) Lesley Myrvold get in deep with a discussion about grief and adrenal insufficiency. Along the way they chat about Lesley's teenage diagnosis with Addison's, the importance of true friendship, and how Lesley balances a full work life, weekend volunteer work, and her PAI diagnosis.

A friendly reminder from Vanessa and Lesley: It's ok to stress dose when you feel like you need it! Click here for NADF's Stress Dosing Guidelines

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Dr. Elizabeth Regan joins Vanessa to discuss how her skills as a researcher and her adrenal insufficiency diagnosis combined to motivate her to create the MyAI registry and be a medical detective in her own healthcare. They also lay out a vision for how the whole community can come together to further adrenal insufficiency research.

Watch Dr. Regan's presentation on the MyAI registry >>

Learn more about the MyAI registry >>

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Come be a fly on the wall as Vanessa chats with her friend Heidi Engelhardt about living an active life with Addison's disease, what it's like to receive a diagnosis at a young age, and the importance of stress dosing for emotional stress and grief.

Plus Heidi and Vanessa share their words of advice for teens and young adults living with adrenal disease.

Heidi is the NADF Colorado Support Group leader. Are you part of our network of support groups? We want to connect you with people who understand what you're going through, whether as a patient or a caregiver. Check out our list of regional and specialized support groups and get signed up today.

Reach out to NADF for support with your adrenal disease: [email protected]

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Erin Foley-Moudry, MPH, the co-president of the NADF board, stops by to chat with Vanessa about her involvement with NADF since her adrenal insufficiency diagnosis at age 19. Erin talks about how the organization has grown and evolved, and how listeners can support NADF to grow further and continue its mission of finding a world without suffering and death from adrenal insufficiency.

Learn more about NADF support groups

Donate to NADF

Connect with Erin via email

Request emergency injection and wallet ID cards

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X

Julia Anthony, Founder of SOLUtion Medical, talks with Vanessa about working towards an adrenal insufficiency auto-injector, how having CAH paved the way for her life's work, and the importance of educating in all directions.

Is your emergency kit ready to go? Check NADF's handy list to find out how ready you are.

Learn how to give an emergency Solu-Cortef injection: 

• For adults (video)
• For pediatric patients (video)
• Download PDF instructions
• Order your FREE emergency injection card to carry with your kit

Visit the SOLUtion Med Co website

Follow SOLUtion on Instagram, Facebook, and LinkedIn

Check out the EMS-friendly MyGuardPod emergency kit myguardpod.com/project-act

We would also like to thank Alain for creating a special discount for the NADF community! Use the discount code NADF5 to receive 5% off your MyGuardPod purchase. In addition, 5% of eligible sales made using this code will be donated back to NADF, helping support our mission to educate, advocate, and serve the adrenal disease community.

---------------

'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. 

NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. 

NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.

Follow us on social media: Facebook - Instagram - TikTok - X