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Allies and Advocacy: Spoonies Unite (Cassie and Chelsea)
Allies and Advocacy: Spoonies Unite
"Chelsea, especially with not having a chronic illness herself. Really did an amazing job of helping me believe that there are humans out there who don't have to experience what we're going through in order to have compassion and empathy and understanding.”
– Cassandra Da’Luz Vieira
Summary:
Eva was joined this week by Cassie and Chelsea. Cassie is originally from Oxford, England, and Chelsea from Golden, Colorado. They currently live in Wichita, Kansas, and advocate for those with a chronic illness to live a full, thriving lifestyle. Together, with Cassie's real-life experience living with Crohn's Disease and Chelsea's knowledge of coaching, the duo provides resources that encourage a better quality of life.
The fantastic things they offer include a podcast - The Real Life Show: Living with a Chronic Illness, a workbook - Mastering Energy Management, a resource library for all things chronic illness at MyWellnessHub.co, an online community full of educational and supportive resources, and their non-profit, Spoonies Unite, to help provide financial assistance for wellness treatments.
Their mission and passion are to inspire those living with a chronic illness and their loved ones to feel their best. Cassie and Chelsea were also selected by Aerie of American Eagle Outfitters to be part of the 2020 Aerie Changemakers cohort and are so proud to use their many platforms to bring awareness to the chronic illness and disability experience.
In this episode, Cassie, Chelsea, and Eva discuss:
- Comparisons between Spoonie vs. Non-Spoonie lifestyles, understanding limitations and how pain is relative.
- How to be an ally for your chronically ill friends.
- How to say “no” to unsolicited advice.
Cassie and Chelsea’s links:
https://therealspooniesunite.buzzsprout.com
https://www.instagram.com/therealspooniesunite
https://www.facebook.com/groups/2443751542368935
https://mywellnesshub.co/
What #AerieREAL Changemakers REALLY Are Made Of: https://www.youtube.com/watch?v=M4J29KUzNT8
Holiday Gift Guide: https://marvelous-thinker-3927.ck.page/71c114737b
BONUS Interview Questions:
What is/are your disorder(s) and or illness/ condition/ailment?
Cassie- Crohn’s Disease, Chelsea - none, just an advocate (does have anxiety at times)
What would you like people to know about your daily life?
That it changes based on the needs of that day.
What kind of support do you get from family or friends?
Listening on phone calls, being understanding of canceling plans, Chelsea and Cassie hold each other accountable and are always flexible with each other
How has your disorder affected your relationships?
Some relationships have ended, some don’t include Cassie’s illness, but being open and honest has strengthened some especially between Cassie and Chelsea
How has your experience turned into advocacy on a larger scale?
We want to share real stories to bring awareness of the experience of so many which turned into a podcast, an online community, a non-profit organization, and being Aerie Changemakers.
If you could have a giant billboard, metaphorically speaking, that could get a message out to millions or billions of people, what would it say and why?
Listen to the experiences of others, they are valid.
In the last 5 years, what have you become better at saying “no” to?
YES! Saying no to some things means you get to say yes to what really matters to
When you feel overwhelmed or unfocused, or have lost your focus temporarily, what do you do?
Take a break, practice self-care
View all episodes
By Eva Minkoff
4.9
1717 ratings
Allies and Advocacy: Spoonies Unite
"Chelsea, especially with not having a chronic illness herself. Really did an amazing job of helping me believe that there are humans out there who don't have to experience what we're going through in order to have compassion and empathy and understanding.”
– Cassandra Da’Luz Vieira
Summary:
Eva was joined this week by Cassie and Chelsea. Cassie is originally from Oxford, England, and Chelsea from Golden, Colorado. They currently live in Wichita, Kansas, and advocate for those with a chronic illness to live a full, thriving lifestyle. Together, with Cassie's real-life experience living with Crohn's Disease and Chelsea's knowledge of coaching, the duo provides resources that encourage a better quality of life.
The fantastic things they offer include a podcast - The Real Life Show: Living with a Chronic Illness, a workbook - Mastering Energy Management, a resource library for all things chronic illness at MyWellnessHub.co, an online community full of educational and supportive resources, and their non-profit, Spoonies Unite, to help provide financial assistance for wellness treatments.
Their mission and passion are to inspire those living with a chronic illness and their loved ones to feel their best. Cassie and Chelsea were also selected by Aerie of American Eagle Outfitters to be part of the 2020 Aerie Changemakers cohort and are so proud to use their many platforms to bring awareness to the chronic illness and disability experience.
In this episode, Cassie, Chelsea, and Eva discuss:
- Comparisons between Spoonie vs. Non-Spoonie lifestyles, understanding limitations and how pain is relative.
- How to be an ally for your chronically ill friends.
- How to say “no” to unsolicited advice.
Cassie and Chelsea’s links:
https://therealspooniesunite.buzzsprout.com
https://www.instagram.com/therealspooniesunite
https://www.facebook.com/groups/2443751542368935
https://mywellnesshub.co/
What #AerieREAL Changemakers REALLY Are Made Of: https://www.youtube.com/watch?v=M4J29KUzNT8
Holiday Gift Guide: https://marvelous-thinker-3927.ck.page/71c114737b
BONUS Interview Questions:
What is/are your disorder(s) and or illness/ condition/ailment?
Cassie- Crohn’s Disease, Chelsea - none, just an advocate (does have anxiety at times)
What would you like people to know about your daily life?
That it changes based on the needs of that day.
What kind of support do you get from family or friends?
Listening on phone calls, being understanding of canceling plans, Chelsea and Cassie hold each other accountable and are always flexible with each other
How has your disorder affected your relationships?
Some relationships have ended, some don’t include Cassie’s illness, but being open and honest has strengthened some especially between Cassie and Chelsea
How has your experience turned into advocacy on a larger scale?
We want to share real stories to bring awareness of the experience of so many which turned into a podcast, an online community, a non-profit organization, and being Aerie Changemakers.
If you could have a giant billboard, metaphorically speaking, that could get a message out to millions or billions of people, what would it say and why?
Listen to the experiences of others, they are valid.
In the last 5 years, what have you become better at saying “no” to?
YES! Saying no to some things means you get to say yes to what really matters to
When you feel overwhelmed or unfocused, or have lost your focus temporarily, what do you do?
Take a break, practice self-care