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ALS to the Moon and Back — Episode 7

This one is a classic wandering chat.

We start with biblical rain, leaking dams, and a surprisingly detailed conversation about vetiver (yes… the grass 😅), before moving into what’s really been on my mind lately.

We touch on the equipment block — that frustrating space where funding might exist on paper, but actually accessing the right consumables and support is a whole different story. It’s one of the realities of living with ALS that doesn’t get talked about enough.

But this episode goes much wider than that.

Portia and I talk about falls (including my very undignified leech-related incident), the ripple effect on carers, and the constant recalibration between independence and safety. We also dive into nervous system load, toxins, emotional stress, and why sometimes the work of letting things go — properly letting them go — matters just as much as anything physical.

Along the way there are greyhound stories, apartment dog advocacy, a few blunt truths, and plenty of laughs — because that’s just how we roll.

It’s honest, a bit messy, occasionally sweary, and very real.

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