In this episode, Nicole Watson shares her daughter Emma’s powerful journey living with Dravet syndrome, a rare and severe form of epilepsy. From the early days of uncertainty and searching for answers to finding the right care and treatment, Nicole opens up about resilience, hope, and the lessons learned along the way. Her story offers heartfelt insight for families, caregivers, and healthcare professionals alike.

Ardra Shephard, a musician, author, fashion-show TV host, podcaster, and MS advocate, discusses her experiences living with MS, including how she uses her story to educate and encourage others living with MS. She is joined by Jiwon Oh, MD, Medical Director of the Barlo Multiple Sclerosis Program at St. Michael’s Hospital, Toronto, ON, who describes how advancements in the diagnosis and treatment of MS have improved outcomes for individuals living with this condition. 

Lisa Volenec, a patient advocate and General Manager of KMTV, Omaha, NE, shares how incorporating lifestyle modifications—such as diet, exercise, and community engagement—has enhanced her Parkinson disease treatment. She is joined by double-board-certified neurology and lifestyle medicine physician and fellowship-trained movement disorder specialist Rachel Dolhun, MD, DipABLM, principal medical advisor at The Michael J. Fox Foundation, who offers expert insights on integrating these strategies into comprehensive care for patients with movement disorders.

How can neurologists partner with their patients living with Parkinson disease? Kathleen Blake, MD, MPH, Santa Fe, NM, Vice Chair of the Parkinson's Foundation People with Parkinson’s Advisory Council, discusses Parkinson disease care from her unique perspective as both a patient and former physician.

Melody Barthelemy, a human resources specialist, details her experiences living with migraine, including strategies for tracking episodes and thriving with a busy career. She is joined by Dawn C. Buse, PhD, Clinical Professor, Albert Einstein College of Medicine, New York, NY, who discusses recent research in the field. 

Linda Shows, a semi-retired nurse who lives with mild cognitive impairment, and her physician, Wendell Helveston, MD, Hattiesburg Clinic, Hattiesburg, MS, discuss the importance of early diagnosis and treatment in Alzheimer disease, including other factors that can help patients thrive when living with this condition. 

After an attack leading to multiple surgeries and a traumatic brain injury, survivor Kel Mabatah developed a rehabilitation scholarship that enables TBI patients to continue therapy after insurance runs out. Kel is joined by Alfreida Melvin, mother of Dontel, who is a recipient of the scholarship from the “Kel Strong” Mabatah Foundation.

https://www.kelstrongfoundation.com/

We speak with neuromuscular disease expert David Lynch, MD, PhD, attending neurologist in the Division of Neurology at Children's Hospital of Philadelphia and director of the Friedreich Ataxia Program, about the emerging treatment landscape for Friedeich Ataxia as well as Kiersten Riggs, who discusses the events leading to her Friedrich Ataxia diagnosis and how she has adapted to life with Friedrich ataxia.

In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial participation. We are also joined by Merit Cudkowicz, MD, MSc, Head of the Department of Neurology, Chief of Neurology, and Director of the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in Boston, MA who discusses the PLATFORM-ALS trial and the drugs currently in the clinical research and development pipeline.

AJ Tesler shares the story of his daughter, Magnolia, who is living with Rett syndrome. As a parent and caregiver, AJ provides his perspective throughout the diagnostic and therapeutic journey for Rett syndrome and is joined by Rett syndrome expert Carey Fu, MD, Pediatric Neurologist at Vanderbilt University Medical Center in Nashville, TN.