My rare disease

Aspergillosis - Marie Unsworth


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In this episode, I talk to Marie about her experiences with Aspergillosis and the appointments and tests she went through until she eventually got a diagnosis. We discuss that the average time it takes to get a rare disease diagnosis is 7-8 years and the impact that has had on Marie's wellbeing as well as learning your limits and the support that Aspergillosis organisations provide.
You can read Marie's story here:
https://www.blf.org.uk/your-stories/my-shocking-diagnosis-of-aspergillosis
Patient organisations that support people with this condition: Aspergillosis.org , aspergillosistrust.org and British Lung Foundation.
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