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Autism and Invisible Health Conditions (Postural Orthostatic Tachycardia and Ehlers Danlos)
Hello! This video is on autism and invisible health conditions-- in particular, autism and postural orthostatic tachycardia (POTS) as well as autism and Ehlers Danlos Syndrome (EDS). I attempt to give a (layperson's!) overview of POTS and EDS, their diagnostic criteria, discuss how they each overlap with autism. I also share some personal thoughts on why diagnosis of medical conditions can be a relief/positive, why it is valuable for society to accept and understand fluctuating disabilities and part-time use of mobility aids, and general barriers autistic people might experience in accessing healthcare.
References (in progress):
1. The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711487/
2. Ehlers Danlos Syndrome (MayoClinic): https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/symptoms-causes/syc-20362125#:~:text=Ehlers%2DDanlos%20syndrome%20is%20a,underlying%20structures%20in%20your%20body.
3. Neurodivergent People More Likely To Experience Pain due to Hypermobility: https://www.bsms.ac.uk/about/news/2022/02-02-neurodivergent-people-more-likely-to-experience-pain-due-to-hypermobility.aspx
4. Autonomic Dysfunction in Autism Spectrum Disorder: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8756818/
5. Poor Man's Tilt Table Test: https://normalyte.com/blogs/news/the-poor-mans-tilt-table-test?srsltid=AfmBOopzPr-WYqu5jg1qSqwV7c345nuIxY6I6EBPkJsxIcKo_0YBK613
Timestamps:
00:00-2:07: Introduction
2:08-3:27: Why diagnoses can be a relief
3:27-5:24: What is Postural Orthostatic Tachycardia (POTS)?
5:25 - 8:47: Delays and at-home tests for POTS
8:48 - 10:30: What helps with POTS?
10:35 - 12:34: Understanding fluctuating disabilities and mobility aids
12:35 - 13:20: POTS and autism
13:21 - 14:31: What is Ehlers Danlos Syndrome (EDS)?
14:32 - 17:11: Unique overlap between autism and EDS
17:12 - 21:40: EDS diagnostic criteria and hypermobility tests
21:41 - 23:50: Autism and general healthcare barriers
#autism #neurodiversity #pots #posturalorthostatictachycardiasyndrome #ehlersdanlos #ehlersdanlossyndrome #invisibleillness #disability #neurodivergence #disabilitypride
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By All NeurotypesHello! This video is on autism and invisible health conditions-- in particular, autism and postural orthostatic tachycardia (POTS) as well as autism and Ehlers Danlos Syndrome (EDS). I attempt to give a (layperson's!) overview of POTS and EDS, their diagnostic criteria, discuss how they each overlap with autism. I also share some personal thoughts on why diagnosis of medical conditions can be a relief/positive, why it is valuable for society to accept and understand fluctuating disabilities and part-time use of mobility aids, and general barriers autistic people might experience in accessing healthcare.
References (in progress):
1. The Relationship between Autism and Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7711487/
2. Ehlers Danlos Syndrome (MayoClinic): https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/symptoms-causes/syc-20362125#:~:text=Ehlers%2DDanlos%20syndrome%20is%20a,underlying%20structures%20in%20your%20body.
3. Neurodivergent People More Likely To Experience Pain due to Hypermobility: https://www.bsms.ac.uk/about/news/2022/02-02-neurodivergent-people-more-likely-to-experience-pain-due-to-hypermobility.aspx
4. Autonomic Dysfunction in Autism Spectrum Disorder: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8756818/
5. Poor Man's Tilt Table Test: https://normalyte.com/blogs/news/the-poor-mans-tilt-table-test?srsltid=AfmBOopzPr-WYqu5jg1qSqwV7c345nuIxY6I6EBPkJsxIcKo_0YBK613
Timestamps:
00:00-2:07: Introduction
2:08-3:27: Why diagnoses can be a relief
3:27-5:24: What is Postural Orthostatic Tachycardia (POTS)?
5:25 - 8:47: Delays and at-home tests for POTS
8:48 - 10:30: What helps with POTS?
10:35 - 12:34: Understanding fluctuating disabilities and mobility aids
12:35 - 13:20: POTS and autism
13:21 - 14:31: What is Ehlers Danlos Syndrome (EDS)?
14:32 - 17:11: Unique overlap between autism and EDS
17:12 - 21:40: EDS diagnostic criteria and hypermobility tests
21:41 - 23:50: Autism and general healthcare barriers
#autism #neurodiversity #pots #posturalorthostatictachycardiasyndrome #ehlersdanlos #ehlersdanlossyndrome #invisibleillness #disability #neurodivergence #disabilitypride