aVERY BRIGHT LIFE

In this episode, I’m catching you up on Avery’s summer camp experience, a sleep study that uncovered some unexpected news, and the frustration of having her surgery canceled last minute due to a nursing shortage. I’m sharing what we’ve been navigating as a family and how we’re finding ways to keep moving forward, even when things don’t go as planned.

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This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery).

Read more and find the transcript for this episode at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠averybrightlife.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@LisaThornbury⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠aVERY Bright life⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (formerly Forever In Mom Genes)

In a nutshell this episode is about how brave Avery's parents are for dropping her off at camp. LOL! It's also about Avery's upcoming surgery. And... a bit of a Debbie Downer moment about what I'm worried about and obsessively researching at the moment. I thought I'd share it with you in case you'd like to join me in worrying about this thing that currently, we have no control over, BUT if we put our heads together, maybe we can come up with a plan?

Also, get a load of who did the intro and joke in this episode in Avery's absence!

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This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery).

Read more and find the transcript for this episode at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠averybrightlife.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@LisaThornbury⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠aVERY Bright life⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ (formerly Forever In Mom Genes)

This camper is headed off to summer camp... sleep away camp! Ohmygod I'm nervous. This is a first for us. But it's going to be great. We've got this. We've done the research and chatted with our friend, Mabels Labels, Julie Cole. Julie shared her expert packing tips and some valuable "camp for newbie parents" insights.

Grab your flashlight and some bug spray and let's do this!

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Mentioned in this episode:

Julie Cole

Talii Towels

Julie Cole’s Ultimate Guide to Camp-eBook

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This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery).

Read more and find the transcript for this episode at ⁠⁠⁠⁠⁠⁠⁠⁠⁠averybrightlife.com⁠⁠⁠⁠⁠⁠⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠@LisaThornbury⁠⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠⁠⁠⁠⁠⁠aVERY Bright life⁠⁠⁠⁠⁠⁠⁠⁠⁠ (formerly Forever In Mom Genes)

Content Warning: I share some unpleasant/hateful comments left on our Instagram page.

This is not what we had planned for our 100th episode. In fact, I had a really creative and "inspiring" episode planned. But for the reasons mentioned in this episode, it didn't happen. So here we are. Please enjoy this episode where we share a few things learned throughout the course of 100 episodes. And I try to stay on topic. Maybe I'll finally master that by our 200th episode. :)

***

This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery).

Read more and find the transcript for this episode at ⁠⁠⁠⁠⁠⁠⁠⁠averybrightlife.com⁠⁠⁠⁠⁠⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠@LisaThornbury⁠⁠⁠⁠⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠⁠⁠⁠⁠aVERY Bright life⁠⁠⁠⁠⁠⁠⁠⁠ (formerly Forever In Mom Genes)

For Rare Chromosome & Gene Disorder Awareness Day I put on my scientist hat (I'm not a scientist... I barely passed high school chemistry class!) and share... in VERY basic terms... what we've learned about chromosomes and genes and how it all relates to rare genetic disorders like Avery's.

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This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery).

Read more and find the transcript for this episode at ⁠⁠⁠⁠⁠⁠⁠averybrightlife.com⁠⁠⁠⁠⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠⁠⁠⁠⁠@LisaThornbury⁠⁠⁠⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠⁠⁠⁠aVERY Bright life⁠⁠⁠⁠⁠⁠⁠ (formerly Forever In Mom Genes)

Avery's big brother aka "Bruh" talks about growing up with a sibling who has disabilities. He also shares how he views the future as a 'lion hearted' trustee in Avery's Microboard.

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This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery).

Read more and find the transcript for this episode at ⁠⁠⁠⁠⁠⁠averybrightlife.com⁠⁠⁠⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠⁠⁠⁠@LisaThornbury⁠⁠⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠⁠⁠aVERY Bright life⁠⁠⁠⁠⁠⁠ (formerly Forever In Mom Genes)

Questions or Partnership Inquiries: [email protected]

Have a comment, question, episode suggestion or just want to say hello? We’d love to hear from you! Message us old-timey style by commenting on our ⁠⁠⁠⁠⁠⁠podcast page⁠⁠⁠⁠⁠⁠. Or show us your techie and leave an AUDIO message via the ⁠⁠⁠⁠⁠⁠Anchor messaging button⁠⁠⁠⁠⁠⁠! We might even use your voice message in an upcoming episode!

Thanks for listening. 💜

In this ode to Mother's Day and Nurse's week, I share how my mom was the original mama bear (I learned from the best) and talk about nurses and their "secret magic." I also over-share why my husband had to take a flashlight to my undercarriage. 🧐

Avery independently recorded and edited her own jokes this week and recorded a brief segment on what she loves about her mom. 😍

***

This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery)

Read more and find the transcript for this episode at ⁠⁠⁠⁠⁠averybrightlife.com⁠⁠⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠⁠⁠@LisaThornbury⁠⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠⁠aVERY Bright life⁠⁠⁠⁠⁠ (formerly Forever In Mom Genes)

Questions or Partnership Inquiries: [email protected]

Have a comment, question, episode suggestion or just want to say hello? We’d love to hear from you! Message us old-timey style by commenting on our ⁠⁠⁠⁠⁠podcast page⁠⁠⁠⁠⁠. Or show us your techie and leave an AUDIO message via the ⁠⁠⁠⁠⁠Anchor messaging button⁠⁠⁠⁠⁠! We might even use your voice message in an upcoming episode!

Thanks for listening. 💜

If you have a child with developmental disabilities, you might want to check out cheerleading. This sport is active, accessible, inclusive, empowering, highly social, and a lot of fun.

In this episode we talk about our experience with cheer and Avery hops on to explain what she loves about this sport.

This episode was prerecorded and will air on the day Avery's team competes at the World Cheer Competition in Florida. Go Team Canada!!

***

This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery)

Read more and find the transcript for this episode at ⁠⁠⁠⁠averybrightlife.com⁠⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠⁠@LisaThornbury⁠⁠⁠⁠

Facebook: ⁠⁠⁠⁠aVERY Bright life⁠⁠⁠⁠ (formerly Forever In Mom Genes)

Questions or Partnership Inquiries: [email protected]

Have a comment, question, episode suggestion or just want to say hello? We’d love to hear from you! Message us old-timey style by commenting on our ⁠⁠⁠⁠podcast page⁠⁠⁠⁠. Or show us your techie and leave an AUDIO message via the ⁠⁠⁠⁠Anchor messaging button⁠⁠⁠⁠! We might even use your voice message in an upcoming episode!

Thanks for listening. 💜

I'm feeling a little "meh" lately. Not happy, not sad. Just flat. Maybe you can relate?

***

This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery)

Read more and find the transcript for this episode at ⁠⁠⁠averybrightlife.com⁠⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠⁠@LisaThornbury⁠⁠⁠

Facebook: ⁠⁠⁠aVERY Bright life⁠⁠⁠ (formerly Forever In Mom Genes)

Questions or Partnership Inquiries: [email protected]

Have a comment, question, episode suggestion or just want to say hello? We’d love to hear from you! Message us old-timey style by commenting on our ⁠⁠⁠podcast page⁠⁠⁠. Or show us your techie and leave an AUDIO message via the ⁠⁠⁠Anchor messaging button⁠⁠⁠! We might even use your voice message in an upcoming episode!

Thanks for listening. 💜

I don't love talking about the dark stuff. But I feel like the more we know, the better prepared we are to protect our vulnerable kids.

*Content Warning—not for younger or sensitive listeners.

***

This podcast was recorded in Garageband and edited by Lisa Thornbury (with assistance from Avery)

Read more and find the transcript for this episode at ⁠⁠averybrightlife.com⁠⁠.

And, come chat with us on social! No seriously, c'mon over! It's fun there.

Instagram: ⁠⁠@LisaThornbury⁠⁠

Facebook: ⁠⁠aVERY Bright life⁠⁠ (formerly Forever In Mom Genes)

Questions or Partnership Inquiries: [email protected]

Have a comment, question, episode suggestion or just want to say hello? We’d love to hear from you! Message us old-timey style by commenting on our ⁠⁠podcast page⁠⁠. Or show us your techie and leave an AUDIO message via the ⁠⁠Anchor messaging button⁠⁠! We might even use your voice message in an upcoming episode!

Thanks for listening. 💜