<div>This special episode of 1 in 20,000 features  George Estreich, author of 'Fables and Futures:  Biotechnology, Disability, and the Stories We Tell Ourselves'. In a candid conversation, Estreich discusses the inspiration behind his work, his now teenage daughter Laura, who was diagnosed with Down Syndrome and what he has experienced of disability through her. He also shares his thoughts on how social expectations make people with disabilities vulnerable, and what could be done to protect them.<br><br> </div><div>About the book: How new biomedical technologies—from prenatal testing to gene-editing techniques—require us to imagine who counts as human and what it means to belong.</div><p>See <a href="https://www.sunoindia.in/privacy-policy">sunoindia.in/privacy-policy</a> for privacy information.</p>

This special episode of 1 in 20,000 features George Estreich, author of 'Fables and Futures: Biotechnology, Disability, and the Stories We Tell Ourselves'. In a candid conversation, Estreich discusses the inspiration behind his work, his now teenage daughter Laura, who was diagnosed with Down Syndrome and what he has experienced of disability through her. He also shares his thoughts on how social expectations make people with disabilities vulnerable, and what could be done to protect them. About the book: How new biomedical technologies—from prenatal testing to gene-editing techniques—require us to imagine who counts as human and what it means to belong.See sunoindia.in/privacy-policy for privacy information.

This special episode of 1 in 20,000 features&nbsp; George Estreich, author of 'Fables and Futures:&nbsp; Biotechnology, Disability, and the Stories We Tell Ourselves'. In a candid conversation, Estreich discusses the inspiration behind his work, his now teenage daughter Laura, who was diagnosed with Down Syndrome and what he has experienced of disability through her. He also shares his thoughts on how social expectations make people with disabilities vulnerable, and what could be done to protect them.<br><br> About the book: How new biomedical technologies—from prenatal testing to gene-editing techniques—require us to imagine who counts as human and what it means to belong.<p>See <a href="https://www.sunoindia.in/privacy-policy" rel="noopener noreferrer">sunoindia.in/privacy-policy</a> for privacy information.</p>

Awaiting Change

There are more than 7,000 documented rare conditions in the world. While there is no known cure for some conditions, where there is a cure (or maintenance through medicines is possible), the cost of medication is exponentially high to bear. This podcast will focus on the status of rare conditions in India, which has been talked about very little in Indian society. It will be a one-of-its-kind attempt in India to document the gamut of challenges and achievements of people with rare conditions and will open a constructive dialogue on what can be done. This is important because an estimated 1 in 20 Indians are affected by a rare disease. The series will bring out the human face behind rare conditions – the patients, the families, caregivers, doctors, activists and geneticists working to improve life for people with rare conditions.

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Awaiting Change

Awaiting Change

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