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Episode 6 Becoming A warrior
In this episode I share my experience as a special needs Mom who pushed herself into become a warrior for the things that her severely disabled son needed.
From education to health care benefits and nursing, nothing has come without a significant amount advocacy and fighting.
There is very little help out there for new parents trying to figure out which direction to turn when accessing special help, special services, special education etc for their disabled and medically fragile child.
For me, I learned the hard way that centralized and organized care, research and managing was not done for you. I had to step out of my career aspirations, and into my sons care and management of his care, because it is more than a full time job. And it is not easy to navigate the complicated world of special needs care and all that comes with it.
I was a Mom of three children, struggling to figure out how to give my family all of me, when basically 90% of me was invested into my son Daniel.
My early years with my kids, were a whirlwind of trying to leave my career dreams behind, while also trying to make sure they all were safe and happy.
Today, my son Daniel is 23 years old, turning 24 on November 22, 2021. And my daughter just found out she passed the California Bar exam, My youngest Son is extremely gifted and studying music and performance at Berklee College of Music, I have been married to my husband and best friend for 29 years, and Daniel is here with me. I am still his advocate, managing his complexities and things are still very difficult.
I have adapted, and recreated myself over and over. And through podcasting, video editing, and writing, I am stepping into a new adventure of a different kind of vulnerability.
Please enjoy the episode. And come back for episode 7, where I will start a series of short stories based on some of the most incredibly wonderful moments, and the most traumatic moments of my adapted life.
Watch us on YouTube, at
https://www.youtube.com/channel/UCQr7Ot0J0o6_gRnG_fJvzDg
Visit Daniel's Special Art Shop at
https://www.etsy.com/shop/DanielsSpecialArt?ref=seller-platform-mcnav
Support the show
https://www.etsy.com/shop/DanielsSpecialArt?ref=seller-platform-mcnav
https://www.youtube.com/channel/UCQr7Ot0J0o6_gRnG_fJvzDg
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By Julie HasselbergerSend me a Text Message
Episode 6 Becoming A warrior
In this episode I share my experience as a special needs Mom who pushed herself into become a warrior for the things that her severely disabled son needed.
From education to health care benefits and nursing, nothing has come without a significant amount advocacy and fighting.
There is very little help out there for new parents trying to figure out which direction to turn when accessing special help, special services, special education etc for their disabled and medically fragile child.
For me, I learned the hard way that centralized and organized care, research and managing was not done for you. I had to step out of my career aspirations, and into my sons care and management of his care, because it is more than a full time job. And it is not easy to navigate the complicated world of special needs care and all that comes with it.
I was a Mom of three children, struggling to figure out how to give my family all of me, when basically 90% of me was invested into my son Daniel.
My early years with my kids, were a whirlwind of trying to leave my career dreams behind, while also trying to make sure they all were safe and happy.
Today, my son Daniel is 23 years old, turning 24 on November 22, 2021. And my daughter just found out she passed the California Bar exam, My youngest Son is extremely gifted and studying music and performance at Berklee College of Music, I have been married to my husband and best friend for 29 years, and Daniel is here with me. I am still his advocate, managing his complexities and things are still very difficult.
I have adapted, and recreated myself over and over. And through podcasting, video editing, and writing, I am stepping into a new adventure of a different kind of vulnerability.
Please enjoy the episode. And come back for episode 7, where I will start a series of short stories based on some of the most incredibly wonderful moments, and the most traumatic moments of my adapted life.
Watch us on YouTube, at
https://www.youtube.com/channel/UCQr7Ot0J0o6_gRnG_fJvzDg
Visit Daniel's Special Art Shop at
https://www.etsy.com/shop/DanielsSpecialArt?ref=seller-platform-mcnav
Support the show
https://www.etsy.com/shop/DanielsSpecialArt?ref=seller-platform-mcnav
https://www.youtube.com/channel/UCQr7Ot0J0o6_gRnG_fJvzDg