We are excited to officially launch our first episode. In this episode, listen as Sarita shares information about their rare journey and what you can expect from the Being Rare podcast.

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Send in a voice message: https://anchor.fm/beingrare/message
Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment">https://anchor.fm/beingrare/support</a>

We are excited to officially launch our first episode. In this episode, listen as Sarita shares information about their rare journey and what you can expect from the Being Rare podcast. --- Send in a voice message: https://anchor.fm/beingrare/message Support this podcast: https://anchor.fm/beingrare/support

We are excited to officially launch our first episode. In this episode, listen as Sarita shares information about their rare journey and what you can expect from the Being Rare podcast.

--- 

Send in a voice message: https://anchor.fm/beingrare/message
Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="noopener noreferrer">https://anchor.fm/beingrare/support</a>

Being Rare

Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding conversations with advocates, clinicians, researchers, and policymakers. Earlier episodes reflect formative discussions; newer episodes focus on systems, decision-making, and real-world impact. 

Explore the latest episodes to hear how lived experience, policy, and innovation intersect—and see how Being Rare shapes real-world change in rare disease ecosystems.

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Hosted by Sarita Edwards, Being Rare examines how policy, clinical practice, innovation, and systems shape the lived experience of rare disease. Patient experience is treated as expertise, guiding conversations with advocates, clinicians, researchers, and policymakers. Earlier episodes reflect formative discussions; newer episodes focus on systems, decision-making, and real-world impact. Explore the latest episodes to hear how lived experience, policy, and innovation intersect—and see how Being Rare shapes real-world change in rare disease ecosystems.

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Being Rare

Being Rare

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