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Better Together with special guests Dr Shantel Duffy and Kelly Thompson
In this episode, our host Matt Roger sits down with Dr Shantel Duffy (Manager, Research Governance and Development at NBMLHD), and Kelly Thompson (Director of Research Operations at NBMLHD) to discuss the roles that consumers can and should play in health and medical research.
In 2016, the National Health and Medical Research Council (NHMRC) and The Consumers Health Forum of Australia Ltd (CHF) released the Statement on Consumer and Community Involvement in Health and Medical Research (the Statement). The Statement's purpose is to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research.
The NHMRC understands the importance of engaging with consumers and the community on its role and activities, whilst also providing leadership and guidance to the health and medical research sector on the meaningful engagement of consumers throughout all stages of research and health care.
Consumer voices often say “Nothing about us without us’. This phrase supports the idea that those who are affected by research have a right to influence what is researched and how this is done. To that end, we outline four levels of health and medical research codesign.
We reflect on some of the barriers and challenges to meaningful consumer engagement in health and medical research, and the ways to overcome those challenges and barriers so that consumers, patients and their families can become better involved in health and medical research.
As research relies on a lot of sensitive patient data, we discuss the governance mechanisms to maintain the security and confidentiality of that data. Shantel and Karen also provide their thoughts on the use of Artificial Intelligence in health and medical research.
Finally, we celebrate some success in consumer engagement in a health and medical research project that had a positive impact on patient health outcomes and service delivery due to the engagement of consumers.
Read NBMLHD's Research Strategy and Implementation Plan here:
https://www.nsw.gov.au/sites/default/files/2022-10/nbmlhd-research-strategy-2022-2025.pdf
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By Consumer driven conversations in health care. Nepean Blue Mountains Local Health District, NSW, AustraliaIn this episode, our host Matt Roger sits down with Dr Shantel Duffy (Manager, Research Governance and Development at NBMLHD), and Kelly Thompson (Director of Research Operations at NBMLHD) to discuss the roles that consumers can and should play in health and medical research.
In 2016, the National Health and Medical Research Council (NHMRC) and The Consumers Health Forum of Australia Ltd (CHF) released the Statement on Consumer and Community Involvement in Health and Medical Research (the Statement). The Statement's purpose is to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research.
The NHMRC understands the importance of engaging with consumers and the community on its role and activities, whilst also providing leadership and guidance to the health and medical research sector on the meaningful engagement of consumers throughout all stages of research and health care.
Consumer voices often say “Nothing about us without us’. This phrase supports the idea that those who are affected by research have a right to influence what is researched and how this is done. To that end, we outline four levels of health and medical research codesign.
We reflect on some of the barriers and challenges to meaningful consumer engagement in health and medical research, and the ways to overcome those challenges and barriers so that consumers, patients and their families can become better involved in health and medical research.
As research relies on a lot of sensitive patient data, we discuss the governance mechanisms to maintain the security and confidentiality of that data. Shantel and Karen also provide their thoughts on the use of Artificial Intelligence in health and medical research.
Finally, we celebrate some success in consumer engagement in a health and medical research project that had a positive impact on patient health outcomes and service delivery due to the engagement of consumers.
Read NBMLHD's Research Strategy and Implementation Plan here:
https://www.nsw.gov.au/sites/default/files/2022-10/nbmlhd-research-strategy-2022-2025.pdf