In this heartfelt episode of Product Pals, Charlotte and Kiet sit down with design lead James Riddell and product leader Ines Goluza, the inspiring team behind Rare Journey — an AI-powered health companion app built to support families navigating rare diseases.

After the birth of his son Felix and his diagnosis with the ultra-rare Myhre Syndrome, James, along with his partner Ivana and sister-in-law Ines, channelled their personal experience into building Rare Journey and co-founding the Myhre Syndrome Foundation Australia. What began as a family crisis quickly became a bold mission to support others through empathy-driven tech.

💡 What you’ll hear:

• Felix’s diagnosis and the origin of Rare Journey

• Why community knowledge is a superpower in healthcare

• Building under pressure: hospital rooms to MVP in 6 months

• Applying product and design thinking in the real world

• Reflections on scaling, funding, and staying mission-led

To find out more about their stories visit:

• Myhre Syndrome Foundation Website: ⁠https://myhresyndromeaus.org/⁠ 

• Rare Journey: ⁠https://www.therarejourney.com/⁠

Other Resources:

• Ronald McDonald House Foundation https://rmhc.org.au/