Welcome to episode 054 of the Beyond the Diagnosis podcast.  In this episode of 3-Minute Thursdays, Histiocytosis Association Executive Director, Deanna Fournier shares her experience in sometimes not having the motivation she needs, but how a change in mindset can

Deanna is the Executive Director of the Histiocytosis Association and an LCH survivor. 

We'd love to hear your feedback!  Let us know if a 3-Minute Thursday touched you!  Reach out to [email protected] and tell us your thoughts.

Music: Walk Together by Olexy

Welcome to Episode 053 of the Beyond the Diagnosis Podcast. In this episode Dr. Gaurav Goyal not only gives some practical tips on how to deal with various non-organ challenges with histiocytosis, but he also shares information about his survivorship study which is so crucial to learning how histiocytosis patients can move from surviving to thriving.

Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected]. 

Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!

Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.

Please consider supporting this podcast financially so we can continue to bring you relevant and timely information while on your histio journey.  To learn more visit https://podcasters.spotify.com/pod/show/histio/support

Resources mentioned in the podcast:

·       To learn more about the survivorship study:

Follow the Histiocytosis Association on social media:

Music: “Heroes” by Noah Smith

Welcome to episode 052 of the Beyond the Diagnosis podcast.  In this episode of 3-Minute Thursday, Histiocyte Society Secretariat and Beyond the Diagnosis Podcast host, Kathy Wisniewski, shares her thoughts on why we should strive to live in the present moment, especially in the face of a rare disease diagnosis. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. 

We'd love to hear your feedback!  Let us know if a 3-Minute Thursday touched you!  Reach out to [email protected] and tell us your thoughts. 

Music: Walk Together by Olexy 

Welcome to episode 051 of the podcast.  In this episode of 3-Minute Thursdays, Histio mom and Histiocytosis Association Chairwoman, Tracy Brown talks about how good friendships can be a source of healing whether you have just a few friends or many. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. 

Tracy is mom to Ian, who is an LCH survivor.  She is also the Chairwoman of Histiocytosis Association Board of Trustees and proud host of the annual Histio Hike Shenandoah.   

We'd love to hear your feedback!  Let us know if a 3-Minute Thursday touched you!  Reach out to [email protected] and tell us your thoughts. 

Music: Walk Together by Olexy 

Welcome to episode 050 of the podcast.  In this episode of 3-Minute Thursdays, Histio Ambassador and HLH warrior, Megan Wileman, shares her experience with secondary HLH and how important it is for us to share our stories to raise awareness and know we’re not alone. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey.

We'd love to hear your feedback!  Let us know if a 3-Minute Thursday touched you!  Reach out to [email protected] and tell us your thoughts.

Music: Walk Together by Olexy

Welcome to episode 049 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursday, Histiocytosis Association Outreach Program Coordinator Melinda Atnip shares how music has impacted her own journey as a caregiver of someone with histiocytosis and how it can truly help with healing.

Join us every Thursday and escape for 3 short minutes into a place of hope and encouragement on your histio journey.

Melinda is the Outreach Program Coordinator for the Histiocytosis Association and a caregiver for her husband, Barry, who was diagnosed with ECD.

We'd love to hear your feedback! Let us know if a 3-Minute Thursday touched you!  Reach out to [email protected] and tell us your thoughts.

Article referenced in today's episode:

How Music Heals - The Work of a Music Therapist

Welcome to Episode 048 of the Beyond the Diagnosis Podcast. In this episode we’re diving into part 2 of 3 about our research grant program.  Today we’ll talk about how grant applications are scored and how the Histiocyte Society’s Scientific Committee makes their recommendations to the HA’s Board.

Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at [email protected]. 

Take a screenshot and tag us @histiocytosis_association on Instagram. We’d love to hear your feedback!

Be sure to subscribe so you can be notified the moment a new episode of Beyond the Diagnosis is released.

We would love it if you would consider supporting this podcast financially so we can continue to bring you relevant and timely information while on your histio

Resources mentioned in the podcast:

Music: “Heroes” by Noah Smith

Welcome to episode 047 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursday, Histiocytosis Association Strategic Communications Associate, Peter Yanefski, shares how we can all push through the toughest of times. Join us every Thursday and escape for 3 short minutes into a place of hope and encouragement on your histio journey.

We'd love to hear your feedback!  Let us know if a 3-Minute Thursday touched you!  Reach out to [email protected] and tell us your thoughts.

If you'd like to support this podcast financially so we can keep bringing you relevant and timely information for your histio journey, please visit https://podcasters.spotify.com/pod/show/histio/support

Music: Walk Together by Olexy

Welcome to episode 046 of the Beyond the Diagnosis podcast.  In this episode of 3-Minute Thursdays, Histiocytosis Association Executive Director, Deanna Fournier shares how we may not be able to control circumstances in our lives, but there are some things we CAN do. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey.

Deanna is the Executive Director of the Histiocytosis Association and an LCH survivor. 

Peer to Peer Support Calls: https://histio.org/resource-overview/peer-chats/

We'd love to hear your feedback!  Let us know if a 3-Minute Thursday touched you!  Reach out to [email protected] and tell us your thoughts.

Music: Walk Together by Olexy

Welcome to episode 045 of the Beyond the Diagnosis podcast.  In this episode of 3-Minute Thursday, Histiocyte Society Secretariat and Beyond the Diagnosis Podcast host, Kathy Wisniewski, refers to a well-known historical figure to demonstrate the power of never giving up. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey.

Music: Walk Together by Olexy