In this episode of the BeyondHAE Podcast, meet Nick and Dylan, two new members of the HAEA Youth Leadership Council, as they share their personal journeys to diagnosis, experiences managing HAE symptoms, and what it means to become part of a community of people who truly understand life with HAE. Together, they discuss balancing HAE with active lifestyles, including their involvement in sports, and the importance of building confidence, resilience, and self-advocacy skills.

Nick and Dylan hope their stories will inspire other young people living with HAE to take an active role in managing their health, pursue their passions, and never let HAE define their potential. Their message is simple: with the right support, knowledge, and determination, HAE does not have to stand in the way of living life to the fullest.

This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠⁠⁠www.haea.org⁠⁠⁠.