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[BLOCKED] Joe's story helps boy from Pakistan
A PAKISTANI boy in excruciating pain is close to having life saving treatment for his rare condition, partly funded by the parents of Newquay miracle boy Joe Way.
Four-year-old Ali Ghazi suffers from Steven Johns Syndrome (SJS), a debilitating adverse drug reaction which has attacked Ali's skin and eyes, stopping him holding his head up because of the intense pain from light sensitivity.
Joe Way contracted the syndrome which left him life limited and Joe died on May 7th last year and his parents Matt and Claire are now helping in Ali's fight for survival after being contacted by Helen Milne President and Founder Milne Stevens Johnson Syndrome Society in Canada.
Helen, whose child has also suffered from SJS was contacted by the parents of four year old Ali Ghazi from Karachi in Pakistan.
Ali literally lives in agony every day with severe ocular surface disease as a result of the SJS reaction to medication and Helen contacted Joe's website to ask for UK assistance for Ali.
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By joeway.co.ukA PAKISTANI boy in excruciating pain is close to having life saving treatment for his rare condition, partly funded by the parents of Newquay miracle boy Joe Way.
Four-year-old Ali Ghazi suffers from Steven Johns Syndrome (SJS), a debilitating adverse drug reaction which has attacked Ali's skin and eyes, stopping him holding his head up because of the intense pain from light sensitivity.
Joe Way contracted the syndrome which left him life limited and Joe died on May 7th last year and his parents Matt and Claire are now helping in Ali's fight for survival after being contacted by Helen Milne President and Founder Milne Stevens Johnson Syndrome Society in Canada.
Helen, whose child has also suffered from SJS was contacted by the parents of four year old Ali Ghazi from Karachi in Pakistan.
Ali literally lives in agony every day with severe ocular surface disease as a result of the SJS reaction to medication and Helen contacted Joe's website to ask for UK assistance for Ali.