Brain Friends

In this episode of Brain Friends, we share a behind-the-scenes conversation between Angie and Dr. Seles on Anomia. Together we weigh the benefits of recognizing the different types of Anomia and the challenges with diagnosis. 

Anomia is a fluent aphasia characterized by word-finding difficulty or the inability to name objects. 

Should we classify Anomia differently? What can Speech-Language Pathologists and researchers do to better help survivors with Anomia?

In this episode of Brain Friends, we discuss 5 ways everyone can contribute to health equity for Black people with aphasia. We give resources for caregivers to get compensated and encourage speech-language pathologists (SLPs) to support health literacy in clients.

1. Implicit Bias Training- to help practitioners recognize stereotypical beliefs that contribute to health inequities.

2. Workforce Diversity- may help clients with communication and participation in research by having practitioners who look like them.

3. Representation in Research- helps ensure generalization of findings and that all voices are included. http://www.aphasiaresource.org/ Also, how are researchers sharing clinical findings? How many researchers have collected data from participants, published the findings, and gone back to the participants to share their study results?

4. Health Literacy- helps individuals understand medical information to make an informed decision. It is important to encourage care partners and provide disability resources that compensate the caregiver  https://www.usa.gov/disability-caregiver

5. Patient Reported Outcomes- helps give people with aphasia a voice in therapy by sharing goals that are important to the individual. Patient-reported outcomes can be challenging to read and should be diversified with large print, pictures, audio versions, or available on assistive devices. 

In this episode of Brain Friends, we invite two stakeholders to celebrate Aphasia Awareness Month, Maura Silverman, the executive director of the National Aphasia Association (NAA), and Gee Jackson, a lawyer and stroke survivor with aphasia.

Together we answer two important questions:
1. What do you know about aphasia now that you wish you would have known on day 1?
2. How can we bring awareness to aphasia?

Listen, laugh, and learn how you can spread awareness about aphasia.

Links:
National Aphasia Association-  https://aphasia.org/
Aphasia Resource Collaboration Hub (ARCH)-  https://aphasiaresource.org/

 

Does it take a village to recover from a stroke? In this episode of Brain Friends, we talk about aphasia support with Angie's care partner Kiehl Cauthorn. 

We discuss the difference between caregivers and care partners, the stages of care in post-stroke aphasia, and advocacy with insurance companies. We give tips to speech-language pathologists (SLPs) and other practitioners on how to include the caregiver/care partner in therapy. 

Finally, we remind aphasia survivors that "you are better today than you were yesterday and you will be better tomorrow than you are today".  We encourage caregivers and care partners to "stop, listen, be patient, and trust". 

In this episode of Brain Friends, we explore primary progressive aphasia or PPA.  

Dr. Seles unravels the complexities of PPA versus other aphasia types and describes the difference between a stroke and frontal temporal dementia.

Angie shares analogies highlighting the key differences from other forms of aphasia.

The impact of PPA on individuals, their families, and communities is ongoing. 

This episode of Brain Friends is a must-listen for survivors,  students, and health professionals. 

In this episode of Brain Friends, we discuss reading and writing difficulties that can co-occur with aphasia. "Alexia" is an acquired reading disorder with difficulty seeing and reading words or understanding the meaning of written words. "Agraphia" is the loss of a previous ability to write. 

Angie discovers new terms related to her aphasia and the connection in the brain. 

Dr. Seles shares clinical stories on navigating alexia in therapy and the role speech-language pathologists play in helping survivors reintegrate into the community.

In this episode of Brain Friends, we invite Dr. Roy Hamilton, Professor of Neurology, Psychiatry, and Physical Medicine and Rehabilitation at the Perelman School of Medicine at the University of Pennsylvania and Director of Penn’s Laboratory for Cognition and Neural Stimulation (LCNS), for a part 2 discussion on Neuroplasticity.  

We begin with the fundamental concept that brains are plastic and designed to change based on experience. Dr. Roy shares how the quality of care in recovery will help language get stronger or activities become easier because the brain reorganizes and adapts also known as "neuroplasticity".

Angie shares analogies that translate brain injury to neuroplasticity like “water on the motherboard”. Dr. Seles seeks tips on how practitioners can help with neuroplasticity in neurorehabilitation. 

Finally, we discuss the importance of diversity and inclusion in research, research staff, and publications.


Dr. Roy Hamilton, link to the LCNS website and the email associated with the LCNS.

https://www.med.upenn.edu/lcns/

[email protected]

Aphasia Resources
https://aphasiaresource.org/

In this episode of Brain Friends, we discuss aphasia treatment and ways Speech Language Pathologists support recovery.

Treatment settings and strategies from automatic speech tasks to errorless learning are explained with examples.

Dr. Seles discusses health equity in aphasia and how to avoid implicit bias. How insurance demands dictate treatment tasks and ways SLPs can write treatment goals to align with function.

Angie shares the importance of inclusion in research, treatment, and the use of patient-reported outcomes.  She discusses her treatment journey and the importance of the Life Participation Approach in Aphasia.

Together we recognize that in aphasia treatment  “the client doesn’t plateau, the clinician does”. 

For more information on the Resource Orientation for Stroke and Aphasia conference:
https://aphasiaresource.org/

Brain Friends Season 2 kicked off with Angie interviewing Dr. Seles on Aphasia Research. 

We discuss sampling biases and how to make sure research is demographically representative. Dr. Seles shares 3 tips on how to recruit a diverse sample in research and the role stakeholders have in health equity.

Finally, we confirm that research is told by who holds the pen and the importance of interdisciplinary collaboration.

Season Finale. Episode 11 is full of humor as we discuss the importance of sleep and the brain.

Angie shares her fear around sleeping after her stroke and how she communicated fatigue "I feel like I have on two mink coats".

Dr. Seles discusses the link between sleep loss and poor brain health. We share tips for healthy aging and sleep hygiene. 

Finally, Brain Friends goes on the road to the Clinical Aphasiology Conference. We want to hear your feedback . Please leave us a review or a topic you want us to cover in Season 2.