An Xtra Ordinary Journey

Breaking down the barriers of augmentative and alternative communtication from a parents perspective


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Jo was a speech and language therapist for many years and has given up her career to concentrate on being a mummy to Lucy who has a very rare genetic disorder called Emanuel Syndrome. She is passionate about AAC (augmentative and alternative communication) and writes a blog where she shares how they as a family use different communication aids and also lots of useful,practical infomation other parents can use. We chat about their various family hobbies, including,girl guiding, running, camping, traveling and festivals and how they help Lucy access them all.

Links Jo mentions in the episode

Communication Matters https://www.communicationmatters.org.uk/

Safe Place Beds https://www.safeplacebedseu.com/

Underneath the Stars Festival https://underneaththestarsfest.co.uk/

Mummy vs AAC blog https://www.mummyvsaac.blog/

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An Xtra Ordinary JourneyBy Nadia Karmazyn-Wall