A preemie parent and digital storytelling facilitator, who just happens to also host the Co-Created podcast, Kristy Wolfe, shares how a simple bedtime ritual became a lens for resilience, advocacy, and neurodevelopmental care, weaving Congenital Heart Disease (CHD) and Neonatal Intensive Care Unit (NICU) experience into digital stories that move clinicians and empower families. We show how short films, crafted with consent and care, can change practice, spark equity conversations, and help kids speak for themselves.

Episode Key Messages

• why stories carry what data cannot
• how a two to four minute digital story influences conferences and policy
• Kane’s voice on pacemakers, echocardiograms and hospital Lego
• reflection prompts for clinicians to change practice
• consent and whose story gets told
• the four-phase Common Language digital storytelling method
• process versus product goals in advocacy and education
• readiness, emotional safety and caregiver well-being
• practical ways to bring neurodevelopmental care into daily life

Other Links Mentioned

• Watch the full Preemie Chat episode
• Watch Hugs & Bugs
• Watch Kane's Story
• Read this episode's blog post
• Learn more about Canadian Premature Babies Foundation's Preemie Chats

About Our Guest (aka the Co-Created host!)

Kristy Wolfe is a digital storytelling facilitator and owner of Kristy Wolfe Stories. She believes there is beauty in every story and she champions real stories in marketing and communication. Kristy exposes the human side of any organization, with consideration for ethics in storytelling, as well as storyteller wellness every step of the way. As a Common Language DST certified facilitator and trainer, Kristy helps individuals and social purpose organizations share meaningful stories, turning their unique experiences into compelling narratives that inspire action. Kristy shares some of her own lived experiences within the context of each workshop she facilitates to validate that authenticity, openness, and vulnerability are essential to creating meaningful digital stories.

Fabiana Bacchini is the Executive Director of the Canadian Premature Babies Foundation. She is a journalist and the published author of From Surviving to Thriving, a Mother’s Journey Through Infertility, Loss and Miracles.

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