The clinical presentation of EDS is quite varied, widespread and complex. Patients often have a widespread pain presentation or these are your "pain everywhere" patients. This is even more challenging when it comes to pediatric patients. In this part 2 of Caring for EDS, I speak with Dr Pradeep Chopra, a renowned expert in this condition, and explore the assessment and management techniques, the cautions, and how to improve the outcomes.

Takeaways in This Episode

• Clinical picture of EDS patients and what a typical patient may look like.
• The unique aspect of growing pains in children with EDS and how to address it.
• Unique aspect of sleep disturbance for EDS patients and how it's different from other pain patients.
• The appropriate age when patients can be diagnosed with EDS and what should be done in the interim.
• Different diagnostics used for EDS
• Role of genetic testing and what you should know before ordering genetic testing.
• Therapeutic options for EDS - what medicines offer best options and how.
• Low Dose Naltrexone for pain management
• Why opioids can be much more harmful for these patients and what one must be aware of when using them.
• What you should know about the type of activity, exercise and physical or occupational therapy for EDS patients.
• What role do interventional pain management techniques play in their pain management.

Links

Pedia Pain Focus episode 23

Ehlers Danlos Syndrome Society

Chronic Pain Partners

Beighton Score

Low Dose Naltrexone Research Trust