The Phelan-McDermid Podcast: Sharing Research, Progress, and Hope

Carla D’Imperio - A mental health support program for Phelan-McDermid syndrome caregivers


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Kate interviews Carla D’Imperio, fellow PMSF staff member and Family Support Specialist, on a program she leads to support mental health for Phelan-McDermid syndrome caregivers. This program, called Caregiver Support Groups, was started last year with funding from Global Genes and is continuing into 2024. Carla explains the decision to start this program and the positive impact it has made in the community. She delves into the importance of having licensed professionals lead these sessions. And she describes which groupings are offered, how to sign up, and how the program is changing over time. International families are welcome to join and the program is free to families.

For more information or to sign up, see: https://pmsf.org/caregiver-support-groups/.

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The Phelan-McDermid Podcast: Sharing Research, Progress, and HopeBy Phelan-McDermid Syndrome Foundation

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