In this moving episode of our podcast, host Joanne talks with her fellow red-headed friend Carole, to discuss the joys and challenges of raising her daughter Grace, who has T9M, a rare genetic condition. Carole talks about the difficulties and fears related to Medicaid funding, the importance of support systems, and the everyday realities of ensuring Grace enjoys a happy and fulfilling life. They touch on societal misses, such as the need for adult-sized changing tables, and Carole shares personal anecdotes about the impact of special needs on family life, the love and fun Grace shares with her Dad, Greg, and the future plans for Grace's care and well-being.