In this week’s entry, I am honored to share The Cutler Family’s experience with LCA5. Listeners will have the opportunity to hear Ari’s LCA5 journey throughout the first 5 years of his life. Jamie, Ari’s mom, highlights the challenges and blessings of LCA5 through Ari’s eyes. Finally, listeners will hear the audio from Jamie and my interview for the Chicago Night for Sight dinner held in November 2025.

Thank you so much to Jamie Cutler for her willingness to share her son’s vision story. My heart is full of gratitude for the staff members at the Foundation Fighting Blindness for connecting Jamie and I through the Chicago Night for Sight presentation. I am truly blessed to be a part of such an incredible organization!

I hope everyone enjoys Ari’s beautiful story. I continue to feel so thankful for your support of the CTL podcast journal and the blind/low vision community. 🙏🏻

Please reach out with questions or comments at [email protected]

In this week's entry, I share my vulnerabilities associated with being a mom with blindness as my children reach their teenage years. Specifically, I discuss my feelings related to the inability to drive due to my low vision. Finally, I share strategies that I am using to overcome these challenges, and the empowerment that results from putting my faith into action. As always, thank you all so much for supporting the CTL podcast journal!

Questions or comments? Email [email protected]

In this week’s entry, I share the details from our weekend in Philadelphia at the 2025 Rocky Run. It was an incredible experience shared with my family, and I am so grateful for the memories we made together. Finally, I discuss my feelings following the first round of production for the documentary, and the expectations for the remaining rounds over the next several weeks. Thank you all so much for listening to the podcast journal!

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In this week’s entry, I share recent positive changes to my night vision and the related clinical trial results which align with these improvements. Additionally, I discuss the airing of the LCA5 segment on GMA, and the emotional roller coaster of that day. Finally, I provide a glimpse into the latest opportunity to share my vision story and clinical trial experience in a unique way. I am so excited to share more throughout this process! Thank you so much for supporting the podcast journal!

Questions or comments? Email us at [email protected]

Watch the GMA segment here:

https://abcnews.go.com/GMA/Wellness/video/gene-therapy-offers-hope-blindness-127055565

n this week’s entry, I share some tools and strategies that I use to accomplish the tasks of every day life. Specifically, I discuss assistive technology, handling impatient people with grace, and the great blessing of finding a community. Additionally, listeners will learn more about my experience with blindness and the general public. As always, thank you all so much for supporting my vision journey!

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In this week’s entry, I share my experience with public speaking as I embrace new opportunities in my vision loss journey. Specifically, I discuss my transformation from a stage-fright 17 year old to a confident participant in recent interviews. Finally, I share my emotions following a conversation with a parent of a child diagnosed with LCA5.

Thank you all so much for supporting the CTL Podcast Journal! Please reach out with questions and comments! 📧 [email protected]

In this week’s entry, I share the results from my most recent vision assessments in the LCA5 clinical trial. It has been a little over 2 years since I received treatment in my left eye, and I am thankful to say we are still seeing vision improvements! We had another positive visit with hopeful news for the future of the trial!

Also, I share the exciting announcement about a recent opportunity to participate in Good Morning America’s “Medical Miracles” segment which highlights the success of the LCA5 clinical trial. Tune in this Friday, October 17th to learn more about the research findings and my experience as a participant in this study.

Thank you all so much for your support!

Questions or comments? Please email us a [email protected]

Details:

Welcome back, listeners! In this week's entry, I share a brief recap of the past six months. Specifically, I discuss the great power of saying "yes" to new opportunities, my struggles with hope during waiting periods, and the most recent updates for the LCA5 clinical trial. Additionally, I share some exciting news about a recent connection to another family affected by the LCA5 vision disease. Stay tuned for clinical trial updates following my two-year vision assessments next week. As always, thank you all so much for supporting the CTL podcast journal!

Questions or comments? We'd love to hear from you! Email us at [email protected]

In this week’s entry, I share my trip down memory lane as we read through my childhood vision file. I felt so many emotions as I recognized the amount of vision I lost over the past 20 years, and the vision I regained following my surgery in the LCA5 clinical trial. Also, I share the results from my 18-month vision assessments in Philadelphia, and some new findings from the imaging of my retinas.

Thank you all so much for following my vision journey through the CTL podcast journal!

In this week’s entry, we welcome a brand-new season of the CTL podcast journal! I share the results of my genetic testing for the breast cancer gene and my MRI from last month. Also, I discuss my upcoming trip to Philadelphia for my 18-month post-surgery vision assessments. Finally, I explain my approach to self-care as I encounter life’s challenges each day.

Questions or comments? 📧 [email protected]