In this week's entry, I share my experience from recent "routine" medical appointments while independently navigating with my mobility cane. Specifically, I share my process of preparation prior to the appointments, my approach to requesting assistance from medical staff, and my perspective of patient care during the procedures. Also, I am excited to include the link to a new mini documentary from Opus Genetics (sponsor of LCA5 clinical trial) which focuses on the origin story of the company. As always, thank you all so much for supporting the CTL podcast journal!

Questions or comments? Email us at [email protected]

The History of Opus Genetics Mini Documentary:

https://youtu.be/6RSPyi10XaI?si=oeoyNJQ-2lnjumtu

In this week's entry, I share a recap of our recent visit to Philadelphia for my three-year vision assessments in the LCA5 clinical trial. I provide an update of improvements in my daytime vision for my treated eye, and the timeline for treatment of my second eye. Listeners will learn my process when preparing for our trips to UPENN for these visits, and the power of my faith paired with my support system as I continue through this research study. As always, thank you all so much for supporting the CTL podcast journal! Have a beautfiul and blessed week!

Email: [email protected]

In this week's entry, I share my final thoughts from the Self Leadership Experience. I am an official graduate of the program, and I am excited for listeners to learn my perspective shift from start to finish. Also, I provide answers to the questions, "What made this experience meaningful to you?" and "Would you recommend the program to others?" Finally, I share my feelings about my upcoming three-year vision assessments for the LCA5 clinical trial. As always, thank you all so much for supporting the podcast journal!

Questions or comments? Email us at [email protected]

SLE Program Enrollment Information:

The Self-Leadership Experience | Disability Reimagined

In this week's entry, I have the honor and privilege to share the recording of the Story Telling Stage from the Bio Convention in June. Listeners will have the opportunity to learn about Dr. Jean Bennett and my perspectives as we share during a fireside conversation. I hope you all enjoy this very special memory from my summer. Thank you so much for your support!

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Details:

In this week's entry, I share my recent learning experiences in the SLE program as I near the end. Listeners will have the opportunity to come along as I walk and talk on the boardwalk during a beautiful Virginia Beach sunrise! I am excited to provide a deeper dive into my real-time mind shift throughout this program. As always, thank you all so much for supporting the CTL podcast journal!

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In this week's entry, listeners will have the opportunity to hear the full Opus Genetics' panel session from the International Bio Convention in San Diego. I remain grateful for the invitation to share my experience as a clinical trial participant, and I am hopeful for the impact of Opus' efforts to elevate awareness in this way. As always, thank you all so much for your support!

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In this week's entry, I share my real-time processing journey of the Self Leadership Experience program. Listeners will learn about the breakdowns and breakthroughs over the first two weeks of this experience, including the realization that I still struggle with acceptance of my disability. My vulnerabilities are on full display with this entry, but it feels amazing to release these thoughts from my mind. Thank you all for your continuous support of the CTL podcast! 📧 [email protected]

Disability Reimagined:

https://www.charliekramervision.com/

In this week’s entry, I share a recap of our trip to California for the International Bio Therapeutics Convention. Listeners will hear about our tourist adventures and my participation in the speaking engagements during the event. Recordings of both sessions will be coming soon! Thank you all so much for your support!

In this week's entry, I share the recording from the IRD Congressional Briefing on Capitol Hill. I attended and spoke at this event with Alliance for Vision Research and the Foundation Fighting Blindness. It was an incredible experience, and I remain grateful for the opportunity to share my experience with Leber's Congenital Amaurosis. Thank you all so much for your continued support of the podcast journal!

In this week's entry, I provide a recap of the 19th annual Baltimore VisionWalk. Our team Jeepers Creepers celebrated 13 years of walking to support the Foundation Fighting Blindness' mission to further drive critical vision research. We had a beautiful Walk Day with family, friends, and fantastic weather! Lastly, I share the details for the upcoming IRD Congressional Briefing on June 8th with the Foundation Fighting Blindness and Alliance for Vision Research. As always, thank you all so much for supporting the podcast journal!

Questions or comments? Please reach out to [email protected]